UHC4RareDiseases

RDI and EURORDIS have partnered to develop the UHC4RareDiseases campaign. The campaign aims to enable patient organisations and the public to call for Universal Health Coverage (UHC) policies and programmes that include rare diseases.

The UHC4RareDiseases toolkit offers practical tools that you can use to raise awareness and ask policymakers to address rare diseases in order to fulfil their commitment to UHC and Health for All.

UHC ensures all people, everywhere, can access quality health services with financial protection.

All UN Member States have agreed to try to achieve Universal Health Coverage by 2030, as part of the Sustainable Development Goals. In 2019, member countries adopted the UN Political Declaration on UHC. The Declaration includes rare diseases! It commits all governments to strengthen efforts to address rare diseases in their plans to achieve UHC.

UHC4RareDiseases comes in the lead up to UHC Day (December 12th) and the Rare Disease Day campaign which calls for equity for patients and families living with a rare disease.

By using the UHC4RareDiseases advocacy and communication tools, rare disease communities around the world can urge their governments to include rare diseases in their countries’ UHC strategies and essential health service packages.

How to use the toolkit

Watch the #UHC4RareDiseases Tutorial

Presented by EURORDIS CEO Yann Le Cam and RDI Director Flaminia Macchia

Download the Toolkit

  1. FACT SHEET on UHC and rare diseases
  2. LETTER TEMPLATE to send to policymakers/ MPs/ local or national Health Ministries
  3. BRIEFING PACKAGE
  4. SOCIAL MEDIA KIT

For more information and editable versions of the template letter and factsheet, contact Clara Hervas, EURORDIS/RDI Public Affairs Manager, clara.hervas@eurordis.org

Find more GIFs in the social media kit

Page created: 23/09/2020
Page last updated: 07/10/2020
 
 
La voix des patients atteints de maladies rares en EuropeEURORDIS Donnant la voix, à l'international, aux personnes vivant avec une maladie rareRare Disease International Pour rapprocher patients, familles et experts sur un forum modéré multilingue, où partager leurs expériences. RareConnect Le programme Rare Barometer est une initiative d’EURORDIS qui vise à réaliser des sondages pour transformer les expériences des patients de maladie rare en faits et chiffres à communiquer aux décideurs politiques.Rare Barometer Campagne internationale de sensibilisation organisée chaque année le dernier jour de février, la Journée Internationale des Maladies Rares est une initiative d'EURORDISRare Disease Day Participez au plus grand événement réunissant tous les acteurs des maladies rares en Europe lors de Conférence européenne bisannuelle sur les maladies rares et les médicaments orphelins (European Conference on Rare Diseases and Orphan Products, ou ECRD). L'ECRD est une initiative d'EURORDISEuropean Conference on Rare Diseases