H-CARE Survey communications toolkit

Use these resources, available in 23 languages, to share the new global Rare Barometer survey with your networks.

 

The more people who respond and share their experiences, the more powerful our voice will be!

Click on the links to download the materials.

1. Survey hyperlink

Share this link to the survey: http://tiny.cc/h-care

2. Rare Barometer survey overview

Learn more about the survey, who can respond and how the results will be used.
H-CARE Survey Overview

3. Language-specific communications materials

Download and use the suggested posts, images and email template, translated into your language, to promote the survey via your networks. You can also share our posts from @eurordis on Twitter, or the EURORDIS Facebook page via your social media accounts.

Bulgarian

Email template

Social media image

Suggested social media posts

Social media video 1

 

German

Email template

Social media image

Suggested social media posts

Social media video 1

 

Portuguese

Email template

Social media image

Suggested social media posts

Social media video 1

 

Croatian

Email template

Social media image

Suggested social media posts

Social media video 1

 

Greek

Email template

Social media image

Suggested social media posts

Social media video 1

 

Romanian

Email template

Social media image

Suggested social media posts

Social media video 1

 

Czech

Email template

Social media image

Suggested social media posts

Social media video 1

 

Hungarian

Email template

Social media image

Suggested social media posts

Social media video 1

 

Russian

Email template

Social media image

Suggested social media posts

Social media video 1

 

Danish

Email template

Social media image

Suggested social media posts

Social media video 1

 

Italian

Email template

Social media image

Suggested social media posts

Social media video 1

 

Slovak

Email template

Social media image

Suggested social media posts

Social media video 1

 

Dutch

Email template

Social media image

Suggested social media posts

Social media video 1

 

Latvian

Email template

Social media image

Suggested social media posts

Social media video 1

 

Slovenian

Email template

Social media image

Suggested social media posts

Social media video 1

 

English

Email template

Social media image

Suggested social media posts

Social media video 1

Social media video 2

 

Lithuanian

Email template

Social media image

Suggested social media posts

Social media video 1

 

Spanish

Email template

Social media image

Suggested social media posts

Social media video 1

 

Finnish

Email template

Social media image

Suggested social media posts

Social media video 1

 

Norwegian

Email template

Social media image

Suggested social media posts

Social media video 1

Swedish

Email template

Social media image

Suggested social media posts

Social media video 1

 

French

Email template

Social media image

Suggested social media posts

Social media video 1

 

Polish

Email template

Social media image

Suggested social media posts

Social media video 1

 

 

4. Rare Barometer logos

Use the Rare Barometer logos alongside articles promoting the survey on your website.

Rare Barometer Logo (white)

Rare Barometer Logo (purple)

Page created: 04/12/2019
Page last updated: 09/01/2020
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases