ERTC Members

Today, ERTC members include over 70 companies, from start-up bio-techs to mid-sized and large pharmaceutical companies, based all over Europe and the USA.

Members agree to financially support EURORDIS activities and benefit from the development of a fruitful exchange between EURORDIS itself, government and regulatory authorities, academics and patients representatives. These exchanges mainly take place at closed bi-annual ERTC Workshops. Three levels of membership exist -Sapphire, Emerald and Ruby - the last one corresponding to the largest financial contribution.

Companies interested in the challenging field of rare disease are invited to become members of the EURORDIS Round Table of Companies. More about ERTC membership

Current Members

 
• Ruby Members
   
Actelion Website Alexion Pharmaceuticals Inc. BMS CLS Behring
Novartis Pharmaceuticals Pfizer PTC Therapeutics Roche
Genzyme Takeda Taysha  
• Emerald Members
   
Akcea Alnylam Akari Amicus Therapeutics

ArgenX

Audentes AvroBio Biogen
Biomarin Bluebird Bio Blueprint Boehringer Ingelheim GmbH
Chiesi Farmaceutici SpA Cytokinetics GBT Gilead
Hansa Medical Horizon therapeutics insmed Illumina
ipsen KYOWA KIRIN LEO PHARMA MSD Europe
Orchard Therapeutics Parexel Santen SAREPTA Therapeutics
Swedish Orphan International UCB Vertex Vifor Fresenius Medical Care

 

 

 
• Sapphire Members
   
Abeona Aeglea Agios Alira
Amryt Amryt Avexis Bayer Schering Pharma AG
BridgeBio Clinigen Group Cydan Dipharma
ENZYVANT Généthon Généthon GRIFOLS
HealX insmed Lysogene-Q Jazz
Lundbeck Lysogene-Q Mereo Biopharma Neurogene
Ovid PassageBio RegenXBio Retrophin
Sangamo Spark Spark
       

 


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Author: EURORDIS

Page created: 19/08/2009
Page last updated: 04/05/2021
 
 
La voce dei malati rari in EuropaEURORDIS Rare Diseases International, la voce internazionale dei malati rariRare Disease International RareConnect è un'iniziativa di EURORDIS che mette in contatto malati, famiglie ed esperti per condividere esperienze in un forum multilingua e moderato RareConnect Il Programma Rare Barometer è un’iniziativa di EURORDIS volta a condurre indagini con l’obiettivo di trasformare le esperienze delle persone affette da malattie rare in cifre e fatti che possono essere condivisi con i decisori politici.Rare Barometer La Giornata delle Malattie Rare, una campagna di sensibilizzazione internazionale che si svolge l'ultimo giorno di febbraio di ogni anno.Rare Disease Day La Conferenza Europea biennale sulle Malattie Rare è il più grande incontro di soggetti interessati al tema delle Malattie Rare in Europa. L'ECRD è un'iniziativa di EURORDISEuropean Conference on Rare Diseases