ERTC Members

Today, ERTC members include over 70 companies, from start-up bio-techs to mid-sized and large pharmaceutical companies, based all over Europe and the USA.

Members agree to financially support EURORDIS activities and benefit from the development of a fruitful exchange between EURORDIS itself, government and regulatory authorities, academics and patients representatives. These exchanges mainly take place at closed bi-annual ERTC Workshops. Three levels of membership exist -Sapphire, Emerald and Ruby - the last one corresponding to the largest financial contribution.

Companies interested in the challenging field of rare disease are invited to become members of the EURORDIS Round Table of Companies. More about ERTC membership

Current Members

 
• Ruby Members
   
Actelion Website Celgene CLS Behring Novartis Pharmaceuticals
Pfizer Roche Genzyme Takeda
       
• Emerald Members
   
Akcea Alexion Pharmaceuticals Inc. Alnylam Akari

Amicus Therapeutics

ArgenX

Audentes Biogen

Biomarin

Bluebird Bio Boehringer Ingelheim GmbH BMS
Chiesi Farmaceutici SpA Cytokinetics Gilead Hansa Medical
Horizon Pharma USA insmed Illumina ipsen
KYOWA KIRIN LEO PHARMA MSD Europe PTC Therapeutics
Recordati Rare Diseases SAREPTA Therapeutics Swedish Orphan International INC Research/inventive Health
Vertex      

 

 

 

 
• Sapphire Members
   
Aegerion Aeglea Agios Avexis
Bayer Schering Pharma AG Biopontis Alliance BridgeBio Clementia
Clinigen Group Cydan Dipharma DLA Piper
Dompé Group EDITAS ENZYVANT Généthon
Généthon GRIFOLS inceptua
insmed Leadiant biosciences Lysogene-Q Mereobiopharma
 op2drugs Orchard Therapeutics Ovid
RegenXBio Sangamo Santhera Spark
UCB Ultragenyx Vifor Fresenius Medical Care
   

* In-Kind member acting as liaison with NORD Corporate Council in the US and in recognition of support of the ERTC workshop dinners


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EURORDIS is not responsible for any content of other websites accessible from this page, nor does it endorse or in any respect warrant any third party products or services by virtue of any information, material or content referred to or included on, or linked from or to the EURORDIS website. EURORDIS does not endorse medicinal products, brands or health services.

 


Author: EURORDIS

Page created: 19/08/2009
Page last updated: 25/04/2019
 
 
La voce dei malati rari in EuropaEURORDIS Rare Diseases International, la voce internazionale dei malati rariRare Disease International RareConnect è un'iniziativa di EURORDIS che mette in contatto malati, famiglie ed esperti per condividere esperienze in un forum multilingua e moderato RareConnect Il Programma Rare Barometer è un’iniziativa di EURORDIS volta a condurre indagini con l’obiettivo di trasformare le esperienze delle persone affette da malattie rare in cifre e fatti che possono essere condivisi con i decisori politici.Rare Barometer La Giornata delle Malattie Rare, una campagna di sensibilizzazione internazionale che si svolge l'ultimo giorno di febbraio di ogni anno.Rare Disease Day La Conferenza Europea biennale sulle Malattie Rare è il più grande incontro di soggetti interessati al tema delle Malattie Rare in Europa. L'ECRD è un'iniziativa di EURORDISEuropean Conference on Rare Diseases