International rare disease events

September 2020

World CML Day

22 September, worldwide, more information

The ‘’3rd Pan-Asian Regional Conference on Thalassaemia & other Haemoglobinopathies’’ 

Dates to be confirmed, New Delhi, India more information


October 2020

7th international Symposium on NBIA & related disorders

1-3 October, Lausanne, Switzerland, more information

EDS ECHO SUMMIT: A Virtual Scientific Conference on EDS, HSD, and Comorbidities

2-3 October, online, more information

World MCT8-AHDS Day 2020

8 October 2020, worldwide, more information

NORD Rare Diseases and Orphan Products Breakthrough Summit

8-9 October 2020, online, more information

4th European Working Group on Gaucher Disease Congress

11 - 14 October 2020 in Leiden, The Netherlands, more information

Run like a Hero- Global PHELAN-MCDERMID Running Week

17-25 October, worldwide, more information

The 2020 International Brain Tumour Awareness Week

24-31 October, worldwide, more information

34th E.S.PKU Conference 2020

29 October - 1 November, Madrid, Spain, more information


November 2020

Scientific conference "Sanfilippo Syndrome and Related Diseases"

12-13 November 2020, online, more information

ERN CRANIO annual meeting 2020

13-14 September 2020, Barcelona, Spain, more information

THE INTERNATIONAL SYNGAP1 CONFERENCE AND FDA PFDD SYNGAP1: Patient Voices

19 November 2020, Rockville, Maryland, USA, more information

EMSP 2020 Annual Conference

20-21 November 2020, Madrid, Spain, more information

The International Netherton Conference

26-27 November, Rotterdam, Netherlands, more information

RAREfest20 Virtual: Interactive science, technology & arts festival

28 November, online, more information

The ‘’15th International Conference on Thalassaemia & other Haemoglobinopathies’’  & the ‘’17th TIF Conference for Patients & Parents’’  

Dates to be confirmed, Thessaloniki, Greece more information


December 2020

European Neurofibromatosis Meeting 2020

10-12 December, Rotterdam, The Netherlands, more information

Duchenne Patient Academy (DPA)

December 2020, Athens, more information


February 2021

Rare Disease Day

28 February, worldwide, more information


March 2021

The ‘’3rd Pan –Middle East Conference on  Haemoglobinopathies’’

Dates to be confirmed, United Arab Emirates more information

Huntington's Disease Youth Organisation - 1st Young Adult Congress

12 - 14 March 2021, Glasgow, Scotland, more information

25th Anniversary Congress of the EAHP – “Hospital Pharmacy 5.0 - the future of patient care“

24 - 26 March 2021, Vienna, Austria, more information

Page created: 03/12/2009
Page last updated: 29/09/2020
 
 
La voce dei malati rari in EuropaEURORDIS Rare Diseases International, la voce internazionale dei malati rariRare Disease International RareConnect è un'iniziativa di EURORDIS che mette in contatto malati, famiglie ed esperti per condividere esperienze in un forum multilingua e moderato RareConnect Il Programma Rare Barometer è un’iniziativa di EURORDIS volta a condurre indagini con l’obiettivo di trasformare le esperienze delle persone affette da malattie rare in cifre e fatti che possono essere condivisi con i decisori politici.Rare Barometer La Giornata delle Malattie Rare, una campagna di sensibilizzazione internazionale che si svolge l'ultimo giorno di febbraio di ogni anno.Rare Disease Day La Conferenza Europea biennale sulle Malattie Rare è il più grande incontro di soggetti interessati al tema delle Malattie Rare in Europa. L'ECRD è un'iniziativa di EURORDISEuropean Conference on Rare Diseases