International rare disease events

November 2019

International Rare Disease Research Consortium (IRDiRC) Meeting

21-22 November, Paris, France

Next ERN-EYE workshop on gene and cell therapies and retinal implant

21 -22 November, Strasbourg, France more information

Skin appendages: Developmental and patophysiological aspects

22 November, Paris, France, more information

International conference on Quality of Life for Osteogenesis Imperfecta (OI)

22 - 25 November, Amsterdam, more information

6ème journée annuelle de la Plateforme d'expertise maladies rares Paris-Sud

29 November, Paris, France, more information


December 2019

Patient Solidarity Day 2019

7 December, more information

UHC Day: Keep the promise

12 December, more information


January 2020

EB 2020 1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information


February 2020

Rare Disease Film Festival

10 February, UK, more information


March 2020

6th RE(ACT) Congress - 4th IRDiRC Conference 2020

11-14 March, Berlin, Germany, more information

4th ISNS Middle East-North Africa Regional Meeting 

8-11 March , Limassol, Cyprus


April 2020

The European IPF Patient Summit

24-26 April 2020, Warsaw, Poland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information


May 2020

International Huntington’s Disease Awareness month

May, worldwide, more information

Huntington's Disease Youth Organisation - 1st Young Adult Congress

9-11 May 2020, Glasgow, Scotland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information

WHO 73rd World Health Assembly

17-21 May, Geneva, Switzerland

Rare Diseases International 6th Annual Membership Meeting

19 – 20 May 2020, Geneva, Switzerland

Page created: 03/12/2009
Page last updated: 18/11/2019
 
 
La voce dei malati rari in EuropaEURORDIS Rare Diseases International, la voce internazionale dei malati rariRare Disease International RareConnect è un'iniziativa di EURORDIS che mette in contatto malati, famiglie ed esperti per condividere esperienze in un forum multilingua e moderato RareConnect Il Programma Rare Barometer è un’iniziativa di EURORDIS volta a condurre indagini con l’obiettivo di trasformare le esperienze delle persone affette da malattie rare in cifre e fatti che possono essere condivisi con i decisori politici.Rare Barometer La Giornata delle Malattie Rare, una campagna di sensibilizzazione internazionale che si svolge l'ultimo giorno di febbraio di ogni anno.Rare Disease Day La Conferenza Europea biennale sulle Malattie Rare è il più grande incontro di soggetti interessati al tema delle Malattie Rare in Europa. L'ECRD è un'iniziativa di EURORDISEuropean Conference on Rare Diseases