#Pledge4RD ahead of the 2019 European elections

From 23 to 26 May 2019, citizens across the EU will vote for the Members of the European Parliament (MEPs) they want to represent them for the next five years.

To ensure that the 25 - 30 million people living with a rare disease in Europe and their families are not left behind and achieve their highest potential of health and well-being, we are calling on MEPs to #Pledge4RD.

 

Ask your MEP to #Pledge4RD

>> Why should your MEP care?

Because rare is common. Many people are affected by a rare disease or know someone who is.

Rare diseases affect 25-30 million people in the EU, nearly 5% of the EU population, or the population of Belgium and the Netherlands combined. This estimate only increases when considering the carers, families and friends who need to support their loved ones.

There are over 6,000 rare diseases. The reality is that most people know somebody that is affected by a rare disease, whether they realise it or not.

Now is the time to call on your returning MEP or a candidate MEP to pledge their support for rare diseases.

>> How can they #Pledge4RD? <<

  1. Download and print the #Pledge4RD sign.
  2. Post their photo on social media using #Pledge4RD #EUelections2019 and tagging @eurordis

 

The #Pledge4RD to leave no one behind

To ensure that the 25 - 30 million people living with a rare disease in Europe and their families are not left behind and achieve their highest potential of health and well-being, MEPs can #Pledge4RD to support a new political framework that:

Read the full pledge leaflet

Click here to download the PDF >>>

 

MEPs & candidates who have pledged

#Pledge4RD #EUelections2019

We thank MEPs and candidates who have already pledged for rare diseases:

Czech Republic

Kateřina Konečná MEP, GUE/NL

Finland

Sirpa PIETIKAÏNEN MEP, EPP

France

Françoise GROSSETÊTE MEP, EPP

Italy

Elisabetta GARDINI MEP, EPP

Poland

Marek PLURA MEP, EPP

Slovenia

Tanja Fajon, S&D

 

 

 

 
 
La voce dei malati rari in EuropaEURORDIS Rare Diseases International, la voce internazionale dei malati rariRare Disease International RareConnect è un'iniziativa di EURORDIS che mette in contatto malati, famiglie ed esperti per condividere esperienze in un forum multilingua e moderato RareConnect Il Programma Rare Barometer è un’iniziativa di EURORDIS volta a condurre indagini con l’obiettivo di trasformare le esperienze delle persone affette da malattie rare in cifre e fatti che possono essere condivisi con i decisori politici.Rare Barometer La Giornata delle Malattie Rare, una campagna di sensibilizzazione internazionale che si svolge l'ultimo giorno di febbraio di ogni anno.Rare Disease Day La Conferenza Europea biennale sulle Malattie Rare è il più grande incontro di soggetti interessati al tema delle Malattie Rare in Europa. L'ECRD è un'iniziativa di EURORDISEuropean Conference on Rare Diseases