François Houÿez

  • Information & Access to Therapies Director & Health Policy Advisor

François Houÿez has worked as a patient advocate since the early 90s and joined EURORDIS in May 2003. He now works as Information & Access to Therapies Director & Health Policy Advisor.

He represents EURORDIS at the Patients’ and Consumers’ Working Party at the European Medicines Agency (EMA) and has been appointed external expert for the evaluation of marketing authorisation applications. He co-chairs the stakeholders’ forum of the EUnetHTA Joint Action.

He pioneered patient advocacy with the European Medicines Agency as part of the first patients’ delegation that engaged dialogue with the Agency back in 1996 and has continuously been involved in the agency activities during the last 26 years.

He has worked both as a volunteer and as an employee for a variety of patients’ organisations at national and international levels.

Please contact him if you have issues regarding access to care (medicines, medical devices, surgery, cross-border care...) as he is leading the EURORDIS Access Campaign.

François speaks French, English and some German.

François is also a patient.

Telephone: +33 1 56 53 52 18
Email: francois.houyez@eurordis.org

 
 
La voce dei malati rari in EuropaEURORDIS Rare Diseases International, la voce internazionale dei malati rariRare Disease International RareConnect è un'iniziativa di EURORDIS che mette in contatto malati, famiglie ed esperti per condividere esperienze in un forum multilingua e moderato RareConnect Il Programma Rare Barometer è un’iniziativa di EURORDIS volta a condurre indagini con l’obiettivo di trasformare le esperienze delle persone affette da malattie rare in cifre e fatti che possono essere condivisi con i decisori politici.Rare Barometer La Giornata delle Malattie Rare, una campagna di sensibilizzazione internazionale che si svolge l'ultimo giorno di febbraio di ogni anno.Rare Disease Day La Conferenza Europea biennale sulle Malattie Rare è il più grande incontro di soggetti interessati al tema delle Malattie Rare in Europa. L'ECRD è un'iniziativa di EURORDISEuropean Conference on Rare Diseases