Lara Chappell

  • Communications Director, Head of Communications & Development

Lara Chappell

Lara Chappell joined EURORDIS in December 2011 and was named Communications Director, Head of Communications and Development in January 2018.

Lara is responsible for EURORDIS' external communications and development strategy as well as overseeing the management of events, staff and budget. She makes the link between these three activities internally. She also manages EURORDIS' branding, web technology and in-kind partnerships.

In her previous role as Communications Director for EURORDIS Lara oversaw the growth of the international Rare Disease Day campaign to more than 90 countries in 2018. People were invited to #ShowYourRare and paint their faces to celebrate the day.

Previously, Lara was the spokesperson in France for the US National Basketball Association (NBA), managing press relations and events. She continued to work for the NBA focusing on marketing sponsorships and then managing a grass-roots event in schools throughout Europe.
She holds a Bachelor of Arts in French Culture with a minor in Mathematics from the University of Pennsylvania as well as a Master of Business Administration from HEC (École des hautes études commerciales de Paris) in France.

A dual French-American national, Lara grew up in the US state of New Jersey and has lived in Paris since 1991.

A native English speaker, she is fluent in French.

Lara is married with two sons, the elder of whom is living with Angelman Syndrome.

Telephone: +33 1 56 53 52 60
Email: lara.chappell@eurordis.org

 
 
La voce dei malati rari in EuropaEURORDIS Rare Diseases International, la voce internazionale dei malati rariRare Disease International RareConnect è un'iniziativa di EURORDIS che mette in contatto malati, famiglie ed esperti per condividere esperienze in un forum multilingua e moderato RareConnect Il Programma Rare Barometer è un’iniziativa di EURORDIS volta a condurre indagini con l’obiettivo di trasformare le esperienze delle persone affette da malattie rare in cifre e fatti che possono essere condivisi con i decisori politici.Rare Barometer La Giornata delle Malattie Rare, una campagna di sensibilizzazione internazionale che si svolge l'ultimo giorno di febbraio di ogni anno.Rare Disease Day La Conferenza Europea biennale sulle Malattie Rare è il più grande incontro di soggetti interessati al tema delle Malattie Rare in Europa. L'ECRD è un'iniziativa di EURORDISEuropean Conference on Rare Diseases