Martina Bergna

  • Events Junior Manager

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Martina Bergna joined EURORDIS in September 2018 as Events Junior Manager.

As part of the Communications and Development team, Martina provides support in the development, registration management, organisation, promotion and fundraising of EURORDIS’ major flagship events.

This includes the European Conference on Rare Diseases and Orphan Products (ECRD), the EURORDIS Black Pearl Awards, the Multi-Stakeholder Symposium on Improving Patients' Access to Rare Disease Therapies and the ERTC (EURORDIS Round Table of Companies) workshops.

Martina is responsible for developing digital communications plans for EURORDIS' major events and for the editorial and design of targeted communications materials. She oversees the design and content of the blackpearl.eurordis.org and rare-diseases.eu websites. Martina also manages the EURORDIS Photo Contest, an international campaign which aims to raise awareness about the daily lives of people living with a rare disease.

Prior to joining EURORDIS, Martina worked for 4 years in event operations, management and communications, both in the private and public sector, including work experience for the European Parliament, the European Commission and Oxfam Magasins du Monde.

Martina holds a Bachelor’s degree in Communication and Translation from IULM University in Milan and a Master’s degree in International Relations from ULB University in Brussels.

Martina speaks Italian, English and French as well as some Spanish and basic Portuguese.

Telephone: +33 1 56 53 52 66
Email: martina.bergna@eurordis.org

 
 
La voce dei malati rari in EuropaEURORDIS Rare Diseases International, la voce internazionale dei malati rariRare Disease International RareConnect è un'iniziativa di EURORDIS che mette in contatto malati, famiglie ed esperti per condividere esperienze in un forum multilingua e moderato RareConnect Il Programma Rare Barometer è un’iniziativa di EURORDIS volta a condurre indagini con l’obiettivo di trasformare le esperienze delle persone affette da malattie rare in cifre e fatti che possono essere condivisi con i decisori politici.Rare Barometer La Giornata delle Malattie Rare, una campagna di sensibilizzazione internazionale che si svolge l'ultimo giorno di febbraio di ogni anno.Rare Disease Day La Conferenza Europea biennale sulle Malattie Rare è il più grande incontro di soggetti interessati al tema delle Malattie Rare in Europa. L'ECRD è un'iniziativa di EURORDISEuropean Conference on Rare Diseases