Sandra Courbier

  • Rare Barometer survey programme Senior Manager

Sandra Courbier

Sandra Courbier joined EURORDIS as Rare Barometer survey programme Senior Manager in June 2015 and is based in the Paris office.

She is responsible for consulting patients and their representatives to support advocacy and policy-making activities at EURORDIS. This is mainly done through the Rare Barometer programme which consists of surveys aiming to collect qualitative & quantitative data on the experience and expectations of rare disease patients and their families to facilitate and streamline the inclusion of patient perspectives into EURORDIS advocacy work. She also facilitates the generation of patient opinions on ethical, legal and social issues around rare disease research through European Commission-funded research projects.

Prior to joining EURORDIS, Sandra worked for the French Governmental information service, obtaining a broad experience of health-related surveys and studies, public communication and public affairs. While working for TNS Opinion in Brussels, the company responsible for the Eurobarometer, she also gained knowledge on international survey research.

She holds a master in survey methodology applied to political science and sociology from the Institut d’études politiques de Grenoble. Sandra speaks French and English. 

 

Telephone: +33 1 56 53 52 63
Email: sandra.courbier@eurordis.org

 
 
La voce dei malati rari in EuropaEURORDIS Rare Diseases International, la voce internazionale dei malati rariRare Disease International RareConnect è un'iniziativa di EURORDIS che mette in contatto malati, famiglie ed esperti per condividere esperienze in un forum multilingua e moderato RareConnect Il Programma Rare Barometer è un’iniziativa di EURORDIS volta a condurre indagini con l’obiettivo di trasformare le esperienze delle persone affette da malattie rare in cifre e fatti che possono essere condivisi con i decisori politici.Rare Barometer La Giornata delle Malattie Rare, una campagna di sensibilizzazione internazionale che si svolge l'ultimo giorno di febbraio di ogni anno.Rare Disease Day La Conferenza Europea biennale sulle Malattie Rare è il più grande incontro di soggetti interessati al tema delle Malattie Rare in Europa. L'ECRD è un'iniziativa di EURORDISEuropean Conference on Rare Diseases