Simone Boselli

  • Public Affairs Director

Simone Boselli

Simone Boselli joined EURORDIS in April 2017 as a Public Affairs Director.  

A member of the European and International Advocacy team, Simone contributes to European policy development and specifically represents EURORDIS in policy discussions on access to therapies, with a focus on reducing delays and inequalities, on the underlying challenges in the field of the value assessment, pricing and reimbursement of orphan medicines, and on current initiatives towards improved access (e.g. MoCA). He has contributed to the finalisation of the paper on 'Breaking the Access Deadlock to Leave No One Behind' and is engaged in finding new policy solutions for improving access to innovative therapies for people with rare diseases.

With a view to advance rare diseases as a public health priority at a global level, Simone also supports advocacy activities at Rare Diseases International and the further development of NGO Committee for Rare Diseases.

Simone brings to EURORDIS over ten years of experience in the European public affairs arena, having previously worked for two leading consultancies in Brussels and specialised in health advocacy and government affairs in particular. He has in-depth expertise in healthcare having devised and implemented advocacy campaigns at EU and national level on a range of global health issues from sustainable health systems, chronic diseases, healthy ageing to mental health, neurodegenerative diseases, malaria, TB and hepatitis C.

Simone graduated in Sciences of Communications at the University of Bologna and holds a post-graduate certificate in European Public Relations and Project Management from the Italian Institute of Commerce in Brussels.

Simone speaks Italian, English and French, and has a working knowledge of Spanish. 

Telephone: +32 2 274 06 13
Email: simone.boselli@eurordis.org

 
 
La voce dei malati rari in EuropaEURORDIS Rare Diseases International, la voce internazionale dei malati rariRare Disease International RareConnect è un'iniziativa di EURORDIS che mette in contatto malati, famiglie ed esperti per condividere esperienze in un forum multilingua e moderato RareConnect Il Programma Rare Barometer è un’iniziativa di EURORDIS volta a condurre indagini con l’obiettivo di trasformare le esperienze delle persone affette da malattie rare in cifre e fatti che possono essere condivisi con i decisori politici.Rare Barometer La Giornata delle Malattie Rare, una campagna di sensibilizzazione internazionale che si svolge l'ultimo giorno di febbraio di ogni anno.Rare Disease Day La Conferenza Europea biennale sulle Malattie Rare è il più grande incontro di soggetti interessati al tema delle Malattie Rare in Europa. L'ECRD è un'iniziativa di EURORDISEuropean Conference on Rare Diseases