TEHDAS
The joint action Towards the European Health Data Space (TEHDAS), helps EU member states and the European Commission to develop and promote concepts for the secondary use of health data to benefit public health and health research and innovation in Europe. The goal of the project is that in the future European citizens, communities and companies will benefit from secure and seamless access to health data regardless of where it is stored.
Project duration:
February 2021 – August 2023
Funding body
EURORDIS’ role in the project
The project is divided into eight work packages led by organisations from different countries. EURORDIS is part of the advisory boards in work packages 5 and 8, which are linked to the secondary use of health data.
Work Package 5: Sharing data for health
- Develops options for governance models for the exchange and secondary use of health data between European countries, based on transparency, trust, citizen empowerment and a common good.
- Provides recommendations for European countries on planning national legislation to enable cross-border exchange and secondary use of health data.
Work Package 8: Citizens
- Seeks to obtain a better understanding of citizens’ attitudes towards sharing their health data.
- Identifies ways to inform people about the use of their health data and raise awareness of the benefits that the secondary use of data offers.