20th ERTC Workshop, Brussels: "Unlocking Europe's Potential in Rare Disease Therapies”

20th Workshop of the EURORDIS Round Table of Companies

"Unlocking Europe's Potential in Rare Disease Therapies”

 

February 26th, 2014

A 10 Year Anniversary Workshop!

Brussels, Belgium
 

Birthday cake

The 20th ERTC workshop explored the ambitious overarching theme of “Unlocking Europe’s Potential in Rare Disease Therapies” between now and 2020 - celebrating ten years of dialogue and collaborative efforts between patient advocates, industry, regulatory agencies and national competent authorities to move forward the development of treatments for rare diseases. The focus was on the research agenda of the new EU Framework Programme Horizon 2020 and the synergies between the European Medicines Agency, the Innovative Medicines Initiative 2 (2014-2020), industry, patients, and science, in order to make sure that the momentum is sustained and new opportunities are optimised. The 90 participants discussed how each partner has a vital role to play in paving the way for new treatments development – industry, policy-makers, regulators, patients, and academia. Over the past ten years, the twice yearly round tables have regularly tackled the key issues that can unblock bottlenecks and advance real solutions for more, safe, efficient, effective, affordable, accessible therapy development.

Participants: 90

Agenda 
Concept Paper 

Proceedings

For ERTC Members only, this document is password protected. If you want to become a member, find out more here or contact Anne-Mary Bodin, Operations Assistant.

 

 

 
 
La voce dei malati rari in EuropaEURORDIS Rare Diseases International, la voce internazionale dei malati rariRare Disease International RareConnect è un'iniziativa di EURORDIS che mette in contatto malati, famiglie ed esperti per condividere esperienze in un forum multilingua e moderato RareConnect Il Programma Rare Barometer è un’iniziativa di EURORDIS volta a condurre indagini con l’obiettivo di trasformare le esperienze delle persone affette da malattie rare in cifre e fatti che possono essere condivisi con i decisori politici.Rare Barometer La Giornata delle Malattie Rare, una campagna di sensibilizzazione internazionale che si svolge l'ultimo giorno di febbraio di ogni anno.Rare Disease Day La Conferenza Europea biennale sulle Malattie Rare è il più grande incontro di soggetti interessati al tema delle Malattie Rare in Europa. L'ECRD è un'iniziativa di EURORDISEuropean Conference on Rare Diseases