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Novembre 2018

An insight into the participation of rare disease patients in research


 

An infographic showing the results of the survey on the participation of rare disease patients in research. The data from this survey have been organised into infographics showing the results from across Europe in multiple languages and by disease grouping.The survey was carried out via Rare Barometer Voices, the EURORDIS survey initiative

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EnglishRare disease patients’ participation in research survey report
Rare disease patients’ participation in research survey infographic
Rare disease patients’ participation in research survey infographic – Rare bone diseases
Rare disease patients’ participation in research survey infographic – Rare cancers
Rare disease patients’ participation in research survey infographic – Rare epilepsies
Rare disease patients’ participation in research survey infographic – Rare eye diseases
Rare disease patients’ participation in research survey infographic – Pulmonary hypertension
Rare disease patients’ participation in research survey infographic – Rare respiratory diseases
FrenchRare disease patients’ participation in research survey infographic
Rare disease patients’ participation in research survey infographic – Rare eye diseases
BulgarianRare disease patients’ participation in research survey infographic
CroatianRare disease patients’ participation in research survey infographic
CzechRare disease patients’ participation in research survey infographic
Rare disease patients’ participation in research survey infographic
DanishRare disease patients’ participation in research survey infographic
Dutch Rare disease patients’ participation in research survey infographic
EstonianRare disease patients’ participation in research survey infographic
FinnishRare disease patients’ participation in research survey infographic
GermanRare disease patients’ participation in research survey infographic
GreekRare disease patients’ participation in research survey infographic
Hungarian Rare disease patients’ participation in research survey infographic
ItalianRare disease patients’ participation in research survey infographic
LatvianRare disease patients’ participation in research survey infographic
LithuanianRare disease patients’ participation in research survey infographic
PolishRare disease patients’ participation in research survey infographic
Portuguese Rare disease patients’ participation in research survey infographic
RomanianRare disease patients’ participation in research survey infographic
Russian Rare disease patients’ participation in research survey infographic
SlovakRare disease patients’ participation in research survey infographic
SlovenianRare disease patients’ participation in research survey infographic
SpanishRare disease patients’ participation in research survey infographic
SwedishRare disease patients’ participation in research survey infographic