National plan for rare diseases: Germany

Please find documents on/ relevant to the national plan for rare diseases and EUROPLAN conference in Germany listed below:

  1. Germany_RD National Plan_2013_German
  2. Germany_RD National Plan_2013_English
  3. EUROPLAN_2010_Germany National Conference_Report_English

National contact:
Allianz Chronischer Seltener Erkrankungen (ACHSE)
German National Alliance for Chronic Rare Diseases

Page created: 19/03/2019
Page last updated: 30/04/2019
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases