National plan for rare diseases: Netherlands

Please find documents on/ relevant to the national plan for rare diseases and EUROPLAN conferences in the Netherlands listed below:

  1. The Netherlands_National Plan RD_2013_Dutch
  2. The Netherlands_Final Advice_Committee on RD (update of National Plan)_2017_Dutch
  3. The Netherlands_ANNEX_Final Advice_Committee on RD (update of National Plan)_2017_Dutch
  4. EUROPLAN_2010_The Netherlands National Conference_Report_English
  5. EUROPLAN_2013_The Netherlands National Conference_Report_English

National contact:
VSOP - Vereniging Samenwerkende Ouder en Patiëntenorganisaties
National Patient Alliance for Rare and Genetic Diseases
www.vsop.nl
vsop@vsop.nl

Page created: 19/03/2019
Page last updated: 06/05/2019
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases