National plan for rare diseases: Portugal

Please find documents on/ relevant to the national programme and integrated strategy for rare diseases, and EUROPLAN conferences in Portugal listed below:

  1. Portugal_RD National Programme_2008-2015_Portuguese
  2. Portugal_RD Integrated Strategy_2015-2020_Portuguese
  3. Portugal_RD Integrated Strategy_2015-2020_English
  4. EUROPLAN_2015_Portugal National Conference_Report_English

National contact:
Aliança Portuguesa de Associações das Doenças Raras
aliancadoencasraras.org
aliancadoencasraras@gmail.com

Page created: 19/03/2019
Page last updated: 06/05/2019
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases