National plan for rare diseases: Slovenia

Please find documents on/ relevant to the national work plan for rare diseases and EUROPLAN conference in Slovenia listed below:

  1. Slovenia_RD Work Plan_2011_Slovenian
  2. Slovenia_RD Work Plan_2011_English
  3. EUROPLAN_2018_Slovenia National Conference_Report_English

National contact:
Združenje za redke bolezni Slovenije
Rare Disease Association of Slovenia
https://zrbs.si/
info@zrbs.si

Page created: 19/03/2019
Page last updated: 06/05/2019
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases