Rare Disease Day News & Events on Your Mobile

The new Rare Disease Day mobile site

With less than one month to go until Rare Disease Day 2015, 28 February, the new RareDiseaseDay.org mobile site allows for a fantastic experience on all mobile devices. Access the site on your mobile to:

Become a Friend of Rare Disease Day to show your organisation's support for the 2015 campaign. Any association with an interest in rare diseases can become a Rare Disease Day friend.

Raise and Join Hands and send us your photos direct from your mobile to show your solidarity with rare disease patients around the world. This symbolic gesture can be done before Rare Disease Day or as part of the activities you have planned for 28 February. Upload your photos to the Rare Disease Day website.

Tell your Story. Tell us your personal story about living with a rare disease by uploading a photo, video or text.

Post your Event to show your support for our 2015 campaign! Rare Disease Day is a patient-driven awareness day - upload details of your event or find out about events taking place near you.

Download the official Rare Disease Day communication materials here or stay up to date with the latest Rare Disease Day news.

To take part in the Rare Disease Day 2015 EURORDIS Event register online or participate online if you are unable to attend in Brussels.


Eva Bearryman, Junior Communications Manager, EURORDIS

Page created: 04/02/2015
Page last updated: 03/02/2015
 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases