How to establish and implement a National Plan

Find here the essential EU legal and policy documents, as well as the documents developed within the EUROPLAN project to help define or advance national rare disease plans or strategies.



EU Policy Documents

EU policy texts providing an overall strategy for rare diseases as well as directions and guidance to help develop national plans.

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EUROPLAN Documents

These documents produced within the EUROPLAN project help competent authorities develop national plans and strategies on rare diseases.

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The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases