Anastassiya Khvan

  • Communications Junior Manager

Anastassiya joined EURORDIS in September 2021 as a Communications Junior Manager to support communication efforts for Rare Disease Day and EURORDIS.

Prior to joining EURORDIS, Anastassiya worked as a Social Media Coordinator with the United Nations Global Compact and Editorial Coordinator with the United Nations Office for Partnerships.

She also worked as a Communications Consultant with UNESCO and did an internship in Public Information with the United Nations Mine Action Service.

Anastassiya holds a Bachelor’s degree in Journalism and French and a Master’s degree in Digital Communications.

She speaks Russian, English and French.

Telephone: +33 1 56 53 52​ 69

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases