Brian Howard

  • Development Relations Senior Manager

Brian Howard

Brian Howard joined EURORDIS in June 2019 as Development Relations Senior Manager, based in the Paris office.

His role involves working with donors, partners, and friends around the world to grow support for EURORDIS' mission and programmes, with a particular focus on building philanthropy and strategic partnerships beyond the health sector.

Prior to joining EURORDIS, Brian worked in development and organizational capacity-building for educational organizations in Europe and the USA. He helped build a strategic fundraising programme for a school in Belgium and, prior to that, worked across many areas of development for leading universities in the United States.

Brian holds degrees in english literature and music performance from Oberlin College and Conservatory.


The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases