Denis Costello

  • Patient Engagement in Digital Technologies Senior Manager & Rare Connect Leader


Denis Costello joined EURORDIS in 2008 as Web Content Manager, later becoming Patient Engagement in Digital Technologies Senior Manager & Rare Connect Leader.

Denis, currently based in Barcelona, is part of the Communications team where he is responsible for the technical aspects of all EURORDIS websites and monthly electronic newsletter.

Since joining EURORDIS, he has overseen the expansion of the online presence to incorporate an international online awareness campaign for Rare Disease Day,, a dedicated rare disease social network, and for key opinion leaders in orphan drug and rare disease policy.

Denis is also a regular speaker at international events and conferences relating to the use of online communications by patient organisations.

With over ten years experience in media production and web development, Denis has worked in Irish national radio and as a web developer in Barcelona, Dublin and Paris.

He holds a degree in Music and French from the National University of Ireland, Maynooth as well as a further degree in Multimedia Technologies from Trinity College Dublin.

An Irish national, Denis speaks English, French and Spanish.

Telephone: +34 932 20 34 78

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases