Fabrizia Bignami

Fabrizia Bignami holds a PhD in Cellular and Developmental Biology from the Department of Cellular Biology at La Sapienza University-Rome, Italy. She has also completed a postdoctoral fellowship at the CNRS Laboratory for Cellular Biology of Membranes, Jacques Monod Institute-Paris, France.

Fabrizia was trained in in Statistics Applied to Medicine (CESAM), Université Paris-VI, and Health Technology Assessment at the UMIT, Tyrol Austria.

Between 2000 and 2002, she was Project Manager for Cell Therapies at the Scientific Department of the French Association against Myopathies (Association Française contre les Myopathies, AFM-Téléthon), France.

In 2002, Fabriziabecame Therapeutic Development Director at EURORDIS, Paris, France, in charge of all activities relating to research and development of medicinal products for rare diseases in Europe.

In particular, she was permanent observer and patient representatives’ supporter at the Committee for Orphan Medicinal Products (COMP), EMA from 2002 to 2009 as in 2009 she was nominated member of the Committee for Advanced Therapies (CAT), EMA.

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The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases