Edith Gross

  • Health and Social Science Senior Project Manager


Edith (Sky) Gross joined EURORDIS in October 2021 as Health and Social Science Senior Project Manager. She is currently representing EURORDIS in the 5 years long European 'Innovative Medicine Initiative' project « Screen4Care » aimed at utilising advanced technologies to shorten the path to diagnosis for rare disease patients.

Edith holds a PhD in medical sociology along with a business degree, and has a rich research background, including four postdoctoral fellowships and more than a dozen peer-reviewed publications in different areas at the intersection of medicine, ethics and social sciences. Her professional background includes a position as director of Social Sciences and Humanities at the Israeli Ministry of Science and Technology, and as Biomedical Director at the Victoria (Australia) Trade and Investment Office. She also directed the Israeli National Council for the Advancement of Women in Science and Technology.


Telephone: +33 7 53 72 92 88
Email: edith.gross@eurordis.org

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases