Erwan Berjonneau

  • Research Executive for the Rare Barometer Programme

Erwan Berjonneau

Erwan Berjonneau joined EURORDIS in September 2016 as a Research Executive for the Rare Barometer programme.

Erwan is responsible for the implementation of the surveys run through the Rare Barometer panel of rare disease patients. He is in charge of the studies’ fieldwork and delivers the data analytics.

Erwan previously worked as a Market Researcher in a Research Institute specialised in Health Care in the French Riviera. He developed an expertise in collecting and analysing patients, physicians and carers’ experiences.

Erwan holds a master's degree in Market Research and Social Studies in Grenoble at the IAE Grenoble Business School.

His mother tongue is French and he speaks fluent English.



The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases