Jean-Marc Sfeir

  • Web Technology Manager

Jean-Marc Sfeir

Jean-Marc Sfeir joined EURORDIS in 2012 as Webmaster, later becoming Web Technology Manager.

Currently based in Barcelona, Jean-Marc is part of the Communications team and is responsible for the EURORDIS websites. He ensures the continual accuracy, completeness and timeliness of information on EURORDIS’ websites, as well as the readability and visual attractiveness of the sites. He also plays a key role promoting the sites and managing EURORDIS’ social media.

In addition, he is involved in other web projects, such as the annual EURORDIS Photo Contest.

His previous experience includes working as an ICT Consultant at the Chambre de Métiers et de l’Artisanat du Val de Marne, creating websites for small enterprises. He also worked as Web Communications Officer at the French electricity company (EDF). He has a passion for multimedia and advertising.

A native French speaker, Jean-Marc also speaks English, some Portuguese and Spanish.

Telephone: +34 932 20 37 11

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases