Kostas Aligiannis

  • Public Affairs Manager – EU & National Integrated Advocacy

Kostas Aligiannis joined EURORDIS in January 2020 as Public Affairs Manager – EU & National Integrated Advocacy.

Kostas is responsible for coordinating and empowering advocacy and outreach capabilities of national rare disease patient groups, notably National Alliances, by enhancing support to the advocacy activities of EURORDIS vis‐à‐vis EU Institutions. He ensures that the priorities and contributions of National Alliances feed into the planning and definition of advocacy activities, that feedback is regularly provided as well as guidance on the process to follow.

Before joining EURORDIS, Kostas worked at a number of Brussels-based NGOs and patient organisations, with a focus mostly on the area of healthcare.

Kostas studied European Studies at the University of Maastricht, and law at KU Leuven. At the moment he is pursuing a Masters in Public Health at the Free University of Brussels-VUB.

In addition to Greek and Dutch (mother tongues), he also speaks English, German and French.

Email: kostas.aligiannis@eurordis.org

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases