Lara Chappell

  • Communications Director, Head of Communications & Development

Lara Chappell

Lara Chappell joined EURORDIS in December 2011 and was named Communications Director, Head of Communications and Development in January 2018.

Lara is responsible for EURORDIS' external communications and development strategy as well as overseeing the management of events, staff and budget. She makes the link between these three activities internally. She also manages EURORDIS' branding, web technology and in-kind partnerships.

In her previous role as Communications Director for EURORDIS Lara oversaw the growth of the international Rare Disease Day campaign to more than 90 countries in 2018. People were invited to #ShowYourRare and paint their faces to celebrate the day.

Previously, Lara was the spokesperson in France for the US National Basketball Association (NBA), managing press relations and events. She continued to work for the NBA focusing on marketing sponsorships and then managing a grass-roots event in schools throughout Europe.
She holds a Bachelor of Arts in French Culture with a minor in Mathematics from the University of Pennsylvania as well as a Master of Business Administration from HEC (École des hautes études commerciales de Paris) in France.

A dual French-American national, Lara grew up in the US state of New Jersey and has lived in Paris since 1991.

A native English speaker, she is fluent in French.

Lara is married with two sons, the elder of whom is living with Angelman Syndrome.

Telephone: +33 1 56 53 52 60
Email: lara.chappell@eurordis.org

 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases