Mathieu Boudes

  • Operations and Projects Manager

Mathieu Boudes

Mathieu Boudes joined EURORDIS in 2013 as Operations and Projects Manager.

Mathieu has transversal responsibility in supporting project managers in research, registries and biobanks, therapeutic development, information and access to medicines, social services and social research, online patient communities and social media, help lines and patient advocates’ capacity building.

Prior to joining EURORDIS, Mathieu worked as a scientist in France, Belgium and Sweden.


Mathieu holds a PhD in Bio-Medical science from the University of Montpellier and an Accelerated Management Programme from Solvay Business School.

Mathieu speaks French and English and is learning Spanish.

Telephone: +33 1 56 53 13 66

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases