Michael Wilbur

  • Chief Operating Officer

Michael WILBUR

Michael joined EURORDIS in March 2019 as Chief Operating Officer, based in the Paris office.

As COO he is responsible for the oversight, support, coordination, development and scale–up of EURORDIS Operations, Programmes and Projects covering the following areas: research infrastructures and clinical research; therapeutic development, information and access to medicines; healthcare and European Reference Networks; social services and integrated care; online patient communities and social media; patient advocates’ capacity building; information and communication; and resource development. His role is to ensure that these activities are strategically meaningful, impactful and cost-effective; positioned within the mission, values and strategy of EURORDIS and involving the right partners and stakeholders.

Before joining EURORDIS, Michael worked in Patient Safety for NHS England/NHS Improvement and the NHS National Patient Safety Agency in the United Kingdom.

Michael holds a Master’s degree from King’s College London and BA from Boston College.

Telephone: +33 1 56 53 52 67
Email: michael.wilbur@eurordis.org

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases