Julia Saperia

Following an undergraduate degree in mathematics from the University of Bristol, Julia Saperia obtained a Master’s degree in Statistics with Applications in Medicine from the University of Southampton in 2003.

After 3 years working as a medical statistician in academia (Southampton and London), she moved to the National Collaborating Centre for Women's and Children's Health (UK).

While there she was a systematic reviewer and project manager, principally writing clinical guidelines on behalf of the National Institute for Health and Clinical Excellence. Her work led her to in collaborate closely with committees of medical experts, and patient and carer representatives.

In September 2009 she joined the European Medicines Agency where she works as a medical statistician supporting the work of the paediatric medicines team and the Paediatric Committee (PDCO).


The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases