Nathalie Bere

Nathalie Bere PhotoNathalie Bere obtained a first degree in Psychology (BSc) followed by a Master’s degree in Public Health (MSc). Nathalie has been working at the European Medicines Agency (EMA) for over 16 years and is currently responsible for the interaction and involvement of patients and consumers in EMA activities.

Since January 2009, Nathalie has been dedicated to supporting the Agency’s engagement with patients and consumers via a network of over 37 European patients and consumers organisations, including management of the Agency’s “Patients and Consumers Working Party” (PCWP). Her work involves not only the daily interactions with patients, but also developing and monitoring the scope of involvement of these stakeholders within the various Agency activities, such as participation in scientific advisory groups, committee consultations and the review of medicines information for patients.

During the past few years there has been a significant increase in patient participation and Nathalie iscommitted to further strengthening this involvement, with particular emphasis on ensuring adequate training and support is given to those who participate.

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases