Paloma Tejada

  • Rare Diseases International Director


Paloma Tejada joined EURORDIS – Rare Diseases Europe in 2007 as head of Communications. She launched the first Rare Disease Day campaign in 2008, growing it from a European patients’ awareness day to an international campaign that mobilises all stakeholders in more than 90 countries today.

In 2014, Paloma was trusted with the launch and development of Rare Disease International – a EURORDIS-led initiative to build a global alliance of rare disease patients across the world to speak with one voice. In 2017, she became Director of Rare Diseases
International, which is now a legally- incorporated international NGO.

Paloma has extensive experience working for not-for-profit and non-governmental organisations in Europe, America and Asia. Previously she worked for worked for Médecins du Monde as a Programme Coordinator for their international HIV/AIDS network. She also worked for Chemonics International, a consulting firm that manages development projects for the World Bank. She spent a year in New Delhi where she managed donor relations for a water and sanitation programme in Tibetan refugee settlements.

After obtaining a Bachelor of Arts in Communications from the American University in Washington DC, she went on to complete a Master of Science in Development Management at the London School of Economics.

A dual Peruvian-French national, she grew up in Lima, lived in Washington DC, London and Paris. She has been based in Geneva since 2014.

She is fluent in English, French and Spanish.

Telephone: +41 763 60 47 25

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases