Josep Torrent-Farnell

Dr. Josep Torrent-Farnell. PhD in Medicine and Surgery and Bachelor of Pharmacy, specialist in internal medicine and clinical pharmacology. Head of the medicine division of the CatSalut, of the Generalitat de Catalunya (May 2016). Full Professor of the Department of Clinical and Therapeutic Pharmacology of the Universitat Autònoma de Barcelona and Head of Section of the Pharmacology Service of the Santa Creu i Sant Pau Hospital. First elected President (2000-2007) and member of the Committee for Orphan Medicinal Products and the Scientific Advisory Committee of the European Agency (2009-2012), member of the Rare Diseases Task Force. EURORDIS expert on research and training programs. He also was a Public Health Executive Agency for the European Union (2006-2010). Expert in the National Strategy for Rare Diseases (2007-2012), member of the Advisory Committee on Minority Diseases (CAMM) and chair of the High Complexity Pharmacological Treatment Advisory Council, Catalan Health Service (2010-2016). Chairman of the Scientific Committee of the CIBER Rare Diseases, President of the Therapies Scientific Committee of the International Rare Diseases Research Consortium (IRDiRC). He is an expert from the Conseil Scientifique de l'Agence Nationale de Sécurité du Médecament et des Produits de Santé de France (2010-2016). Member of the Ethics Committee of Farmaindustria (2001-2016). Coordinator for the creation and first executive director of the Spanish Medicines Agency (1998-2000) and Head of the innovative drugs sector of the European Agency (1994-1998). Order of the Civil Order of the Ministry of Health (2009). Special distinction of the Association of Patients of Rare Diseases of the United States (NORD, 2005). Special Distinction to Leadership in Rare Diseases in Europe by the European Federation of Rare Disease Patients (EURORDIS, 2015).

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases