Raquel Castro

  • Social Policy Senior Manager

Raquel Castro

Raquel Castro joined EURORDIS in 2012.

Currently based in Barcelona, Raquel is part of the Operations Team and is responsible for managing EURORDIS’ activities related to the integration of rare diseases into social services and policies.

Raquel is currently in charge of INNOVCare project, focused on promoting integrated care and on improving social services for people living with a rare disease. She is also involved in the RD-Action, the new Joint Action for rare diseases promoted by the European Union and Member States.

Previously, she was assigned to the European Union Committee of Experts on Rare Diseases (EUCERD) Joint Action, managing the work package on Provision of Specialised Social Services and Integration of Rare Diseases into Social Policies and Services 

Prior to joining EURORDIS, Raquel coordinated the Portuguese Help Line for rare diseases (Linha Rara), obtaining a broad experience in dealing with rare disease patients’ and families’ needs.

With over ten years of experience working in not-for-profit organisations, Raquel has previously been involved in humanitarian and development projects in Europe and in Asia.

Raquel holds a Bachelor of Arts in Communication as well as a post graduate degree in Project Management at the Lisbon School of Economics and Management.

A Portuguese national, Raquel is also fluent in English, French and Spanish.

Telephone: +34 932 20 32 24
Email: raquel.castro@eurordis.org

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseases, Rare Diseases International is a EURORDIS initiativeRare Disease International Bringing together patients, families and experts to share experiences in a moderated multilanguage forum, RareConnect is a EURORDIS initiative RareConnect An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases