Sandra Pavlovic

  • RareConnect Outreach Manager

Sandra Pavlovic

Sandra Pavlovic joined EURORDIS in 2015 as RareConnect Outreach Manager.

Sandra is part of the RareConnect team and is based in Belgrade. After being responsible for developing and maintaining RareConnect online communities specifically within the Balkan region and East Europe her job has expanded to encompass RareConnect communities and conversations across continents and languages.

Sandra has a long term experience as a patient advocate. She has worked as a volunteer as Vice President of the National organisation for rare diseases of Serbia since 2013, and as President of  DEBRA Serbia association since 2010. Among other responsibilities and fundraising related activities, she has organised many events such as conferences, panel discussions, round tables and awareness days. Sandra has also represented organisations on television and local media and participated in working groups related to the amendment of various laws and regulations in the health and social care system in Serbia. Sandra has been working on several projects for improving the quality of life of people affected by rare diseases in Serbia and the Balkan region.

Sandra has two children, the youngest of whom has Epidermolysis bullosa.

She is a native Serbian speaker and also speaks English and Russian. 

Telephone: +381 6 66 67 27 03
Email: sandra.pavlovic@eurordis.org

 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases