Stanislav Ostapenko

  • Communications Manager

Stanislav Ostapenko joined EURORDIS in 2021 as Communications Manager.

Stanislav writes all public communications for EURORDIS-Rare Diseases Europe and oversees weekly operations for communications activities, ensuring that content made public across EURORDIS newsletters, websites, press releases and social media is fully accurate, timely and highly professional.

Prior to joining EURORDIS, Stanislav worked for two years at UNESCO as a Communications Consultant, specialized in human rights, ethics of AI, and social and human sciences. He also worked at the OSCE ODIHR in Warsaw and American Councils in Kyiv, where he created and delivered communication plans and ensured communications support for various events.

Stanislav holds a Master’s degree in European Public Affairs and Policy from the College of Europe.

Stanislav speaks English, French, Russian and Ukrainian.

Telephone: +33 1 56 53 52 61

The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases