Vlasta Zmazek

Vlasta Zmazek

Croatian Alliance for Rare Diseases

e-mail: vlasta@debra-croatia.com

www.debra-croatia.com

Vlasta was elected to the EURORDIS Board of Directors in 2012 and again in 2016.

She is the mother of two sons, the youngest of whom lived with epidermolysis bullosa.

She has been president of DEBRA Croatia since 1996 and provides support for DEBRA Slovenia, Bosnia and Serbia. She is also a member of the Executive Committee of DEBRA International. In 2010, she was a founding member and was elected President of the Croatian Alliance for Rare Diseases. Since then Vlasta has been involved in the organisation of Rare Disease Day in Croatia, of National Conferences and the preparation of the Croatian National Plan for Rare Diseases in cooperation with the Ministry of Health. Vlasta has also provided support in the creation of the National Alliances in Slovenia, Serbia and the former Yugoslav Republic of Macedonia.

Vlasta is a EURORDIS EUROPLAN advisor and was a member of the Programme Committee for the EURORDIS Membership Meeting 2013 in Dubrovnik. Vlasta represents the Croatian Society for Rare Diseases in the EURORDIS Council of National Alliances.

 

 
 
The voice of rare disease patients in EuropeEURORDIS The international voice of people living with rare diseasesRare Disease International Bringing together patients, families and experts to share experiences in a moderated multi-language forum. RareConnect The Rare Barometer Programme is a EURORDIS initiative that carries out surveys to transform rare disease patients' experiences into figures and facts that can be shared with decision-makers.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Join the largest gathering of rare disease stakeholders across Europe, at the biennial European Conference on Rare Diseases and Orphan Products. ECRD is a EURORDIS initiativeEuropean Conference on Rare Diseases