Rare Barometer Voices: Patients' experience of treatments survey communication toolkit

Use these resources, available in 23 languages, to share the new global Rare Barometer survey with your networks.

Rare Barometer Voices - verti - with baseline - RGB.jpg

The more people who respond and share their experiences, the more powerful our voice will be!

Click on the links to download the materials.

1. Survey hyperlink

Share this link to the survey: http://bit.ly/eurordis-survey

2. Rare Barometer survey overview

Learn more about the survey, who can respond and how the results will be used (only available in English).
Experience of Treatment Survey Overview

3. Language-specific communications materials

Download and use the suggested posts, images and email template, translated into your language, to promote the survey via your networks. You can also share our posts from @eurordis on Twitter, or the EURORDIS Facebook page via your social media accounts.

Bulgarian

Email template

Facebook banner

Social media image

Suggested social media posts

Twitter banner

 

French

Email template

Facebook banner

Social media image

Suggested social media posts

Twitter banner

 

Portuguese

Email template

Facebook banner

Social media image

Suggested social media posts

Twitter banner

 

Croatian

Email template

Facebook banner

Social media image

Suggested social media posts

Twitter banner

 

German

Email template

Facebook banner

Social media image

Suggested social media posts

Twitter banner

 

Romanian

Email template

Facebook banner

Social media image

Suggested social media posts

Twitter banner

 

Czech

Email template

Facebook banner

Social media image

Suggested social media posts

Twitter banner

 

Greek

Email template

Facebook banner

Social media image

Suggested social media posts

Twitter banner

 

Russian

Email template

Facebook banner

Social media image

Suggested social media posts

Twitter banner

 

Danish

Email template

Facebook banner

Social media image

Suggested social media posts

Twitter banner

 

Hungarian

Email template

Facebook banner

Social media image

Suggested social media posts

Twitter banner

 

Slovak

Email template

Facebook banner

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Suggested social media posts

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Dutch

Email template

Facebook banner

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Suggested social media posts

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Italian

Email template

Facebook banner

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Suggested social media posts

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Slovenian

Email template

Facebook banner

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Suggested social media posts

Twitter banner

 

English

Email template

Facebook banner

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Suggested social media posts

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Latvian

Email template

Facebook banner

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Suggested social media posts

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Spanish

Email template

Facebook banner

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Suggested social media posts

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Estonian

Email template

Facebook banner

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Suggested social media posts

Twitter banner

 

Lithuanian

Email template

Facebook banner

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Suggested social media posts

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Swedish

Email template

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Suggested social media posts

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Finnish

Email template

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Suggested social media posts

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Polish

Email template

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Suggested social media posts

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4. Rare Barometer Voices logos

Use the Rare Barometer logos alongside articles promoting the survey on your website.

Rare Barometer Voices Logo (white)

Rare Barometer Voices Logo (purple)

Page created: 26/07/2016
Page last updated: 25/03/2019
 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases