Editorial Board

About EURORDIS

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the About EURORDIS section are as follows: Zoe, Ariane, Virginie, Patrice, Eva, Raquel, Nancy, Francois, Denis, Lara, Sharon, Anja, Jean-Marc, Jill

About Rare Diseases

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the About Rare Disease section are as follows: Eva, Lara, Denis

Rare Disease Policy

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Rare Disease Policy section are as follows: Ariane, Virginie, François,  Eva, Lara

Orphan Drugs & Treatment

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Orphan drugs & treatments section are as follows: Virginie, Ariane, François, Elisa, Eva, Lara

Living with a Rare Disease

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Living with a Rare Disease section are as follows: Eva, Jean-Marc

Services & trainings

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Services to Patients section are as follows: Eva, Ariane, Denis, Raquel, Sharon

Get involved

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the Training Resources section are as follows:  Eva, Lara

News & Events

Eurordis.org, run by EURORDIS Rare Diseases Europe, is updated on a daily basis and fully reviewed at least once a year with the exception of news articles. The date of the initial publication of each article and the most recent modification is visible at the bottom of every article.

Eurordis.org does not provide medical advice. This site does not contain an index or database of individual rare diseases.

The contributors to the News and Events section are as follows: Ariane, Anja, Sharon, Lara, Eva