ERTC Members

Today, ERTC members include over 70 companies, from start-up bio-techs to mid-sized and large pharmaceutical companies, based all over Europe and the USA.

Members agree to financially support EURORDIS activities and benefit from the development of a fruitful exchange between EURORDIS itself, government and regulatory authorities, academics and patients representatives. These exchanges mainly take place at closed bi-annual ERTC Workshops. Three levels of membership exist -Sapphire, Emerald and Ruby - the last one corresponding to the largest financial contribution.

Companies interested in the challenging field of rare disease are invited to become members of the EURORDIS Round Table of Companies. More about ERTC membership

Current Members

• Ruby Members
Actelion Website Alexion Pharmaceuticals Inc. BMS CLS Behring
Novartis Pharmaceuticals Pfizer PTC Therapeutics Roche
Genzyme Takeda Taysha  
• Emerald Members
Akcea Alnylam Akari Amicus Therapeutics


Audentes AvroBio Biogen
Biomarin Bluebird Bio Blueprint Boehringer Ingelheim GmbH
Chiesi Farmaceutici SpA Cytokinetics GBT Gilead
Hansa Medical Horizon therapeutics insmed Illumina
Orchard Therapeutics Parexel Santen SAREPTA Therapeutics
Swedish Orphan International UCB Vertex Vifor Fresenius Medical Care



• Sapphire Members
Abeona Aeglea Agios Alira
Amryt Amryt Avexis Bayer Schering Pharma AG
BridgeBio Clinigen Group Cydan Dipharma
ENZYVANT Généthon Généthon GRIFOLS
HealX insmed Lysogene-Q Jazz
Lundbeck Lysogene-Q Mereo Biopharma Neurogene
Ovid PassageBio RegenXBio Retrophin
Sangamo Spark Spark


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Page created: 19/08/2009
Page last updated: 04/05/2021
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases