ERTC Members

Today, ERTC members include over 70 companies, from start-up bio-techs to mid-sized and large pharmaceutical companies, based all over Europe and the USA.

Members agree to financially support EURORDIS activities and benefit from the development of a fruitful exchange between EURORDIS itself, government and regulatory authorities, academics and patients representatives. These exchanges mainly take place at closed bi-annual ERTC Workshops. Three levels of membership exist -Sapphire, Emerald and Ruby - the last one corresponding to the largest financial contribution.

Companies interested in the challenging field of rare disease are invited to become members of the EURORDIS Round Table of Companies. More about ERTC membership

Current Members

 
• Ruby Members
   
Actelion Website Celgene CLS Behring Novartis Pharmaceuticals
Pfizer Roche Genzyme Takeda
       
• Emerald Members
   
Akcea Alexion Pharmaceuticals Inc. Alnylam Akari

Amicus Therapeutics

ArgenX

Audentes Biogen

Biomarin

Bluebird Bio Boehringer Ingelheim GmbH BMS
Chiesi Farmaceutici SpA Cytokinetics Gilead Hansa Medical
Horizon therapeutics insmed Illumina ipsen
KYOWA KIRIN LEO PHARMA MSD Europe PTC Therapeutics
Recordati Rare Diseases SAREPTA Therapeutics Swedish Orphan International INC Research/inventive Health
Vertex      

 

 

 

 
• Sapphire Members
   
Abeona Aegerion Aeglea Agios
Avexis Bayer Schering Pharma AG Biopontis Alliance BridgeBio
Clementia Clinigen Group Cydan Dipharma
DLA Piper Dompé Group EDITAS ENZYVANT
Généthon Généthon GRIFOLS
inceptua insmed Leadiant biosciences Lysogene-Q
Mereobiopharma  op2drugs Orchard Therapeutics
Ovid RegenXBio Sangamo Santhera
Spark UCB Ultragenyx Vifor Fresenius Medical Care
 

* In-Kind member acting as liaison with NORD Corporate Council in the US and in recognition of support of the ERTC workshop dinners


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EURORDIS is not responsible for any content of other websites accessible from this page, nor does it endorse or in any respect warrant any third party products or services by virtue of any information, material or content referred to or included on, or linked from or to the EURORDIS website. EURORDIS does not endorse medicinal products, brands or health services.

 


Author: EURORDIS

Page created: 19/08/2009
Page last updated: 18/06/2019
 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases