ERTC Members

Today, ERTC members include over 70 companies, from start-up bio-techs to mid-sized and large pharmaceutical companies, based all over Europe and the USA.

Members agree to financially support EURORDIS activities and benefit from the development of a fruitful exchange between EURORDIS itself, government and regulatory authorities, academics and patients representatives. These exchanges mainly take place at closed bi-annual ERTC Workshops. Three levels of membership exist -Sapphire, Emerald and Ruby - the last one corresponding to the largest financial contribution.

Companies interested in the challenging field of rare disease are invited to become members of the EURORDIS Round Table of Companies. More about ERTC membership

Current Members

• Ruby Members
Alexion Pharmaceuticals Inc. CLS Behring Actelion Website Novartis Pharmaceuticals
Pfizer PTC Therapeutics Roche Genzyme
Takeda Taysha    
• Emerald Members
Alnylam Akari Amicus Therapeutics ArgenX
Audentes Biogen Biomarin Bluebird Bio
Blueprint Boehringer Ingelheim GmbH BMS Chiesi Farmaceutici SpA
Cytokinetics Daiichi-Sankyo GBT Gilead
Hansa Medical Horizon therapeutics insmed Illumina
MSD Europe Orchard Therapeutics Parexel Santen
SAREPTA Therapeutics Sciensus Swedish Orphan International UCB


Vifor Fresenius Medical Care

• Sapphire Members
Abeona Aeglea Agios Alira
Amryt Amryt Bayer Schering Pharma AG Bionical EMAS
BridgeBio Camurus Clinigen Group Cydan
Dipharma ENZYVANT Généthon Généthon
GRIFOLS HealX insmed Lysogene-Q
Jazz Lundbeck Lysogene-Q Mereo Biopharma
Neurogene Ovid PassageBio ProQR
RegenXBio Sangamo Spark Spark


EURORDIS is not responsible for any content of other websites accessible from this page, nor does it endorse or in any respect warrant any third party products or services by virtue of any information, material or content referred to or included on, or linked from or to the EURORDIS website. EURORDIS does not endorse medicinal products, brands or health services.



Page created: 19/08/2009
Page last updated: 21/10/2021
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases