EURORDIS Events

Upcoming EURORDIS events

February 2019

Rare Diseases International 5th Annual Meeting*

20 February, New York more information

Rare Disease Day 2019 Events

EURORDIS Black Pearl Awards* 

12 February, Brussels, more information, livestream

3rd EURORDIS Multi-Stakeholder Symposium on Improving Patients' Access to Rare Disease Therapies*

13 - 14 February, Brussels more information, livestream

Global Commission to End the Diagnostic Odyssey for Children Living with a Rare Disease, launch event of new road map

20 February, Microsoft Offices Headquarters, Times Square, New York City, more information

Rare Disease Day Policy Event at the United Nations*

Second High-Level Event of the NGO Committee for Rare Diseases

21 February, New York, more information

* These events will be live streamed. Details of how to watch the live stream will be posted on this page 

March 2019

EURORDIS Winter School 

11 - 14 March, Paris more information

May 2019

EURORDIS Membership Meeting 2019

16 - 18 May, Bucharest, Romania more information

ePAG face-to-face meeting 2019

16 May, Bucharest, Romania (held as a satellite meeting to the EURORDIS Membership Meeting 2019).
For ePAG (European Patient Advocacy Group) representatives only. Please email ines.hernando@eurordis.org for more information.

June 2019

EURORDIS Summer School

10 - 14 June, Barcelona more information

 

 

Page created: 10/04/2015
Page last updated: 18/01/2019
 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases