In light of the COVID-19 pandemic, all EURORDIS events will be held online until autumn 2021.

We also have a dedicated webinars page where we include upcoming and past webinars that we run to keep you updated about our work, to engage participants in a consultation or to educate on a new topic that is relevant to rare disease patients.

October 2021

EURORDIS webinar on the Rare2030 survey findings

18 October 2021, online

More information

32nd EURORDIS Round Table of Companies Workshop
"The impact of the EU regulatory network strategy 2020-2025 on the development of orphan medicines"

20 - 21 October 2021, online

Closed event for ERTC members. For more information, please contact Celine Schwob.

November 2021

CNA/CEF meeting

8 - 10 November 2021, online

Closed event for CNA and CEF members.

February 2022

Black Pearl Awards 2022

8 February 2022

More information

June 2022

11th European Conference on Rare Diseases and Orphan Products

27 June to 1 July 2022


The European Conference on Rare Diseases and Orphan Products is recognised globally as the largest, patient-led rare disease event in which collaborative dialogue, learning and conversation takes place, forming the groundwork to shape future rare disease policies.

Please contact for more information.



May 2023

EMM 2023

17 - 18 June 2023, Stockholm, Sweden

Page created: 10/04/2015
Page last updated: 05/10/2021
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases