EURORDIS Events

Upcoming EURORDIS events

May 2019

Intimate Audrey 

1 May - 26 August, Brussels, more information

EURORDIS Membership Meeting 2019

16 - 18 May, Bucharest, Romania more information

ePAG face-to-face meeting 2019

16 May, Bucharest, Romania (held as a satellite meeting to the EURORDIS Membership Meeting 2019).
For ePAG (European Patient Advocacy Group) representatives only. Please email ines.hernando@eurordis.org for more information.

Universal Health Coverage: Including Rare Diseases to leave no one behind

The Rare Diseases International side event to the World Health Organization 72nd World Health Assembly.

23 May, Geneva, Switzerland, organised by Rare Diseases International in collaboration with the NGO Committee on Rare Diseases, more information.

June 2019

EURORDIS Summer School

10 - 14 June, Barcelona more information

October 2019

28th ERTC Workshop 'A New PARADIGM of Meaningful Patient Engagement in the Life Cycle of Medicines'.

15 October, Barcelona, please e mail martina.bergna@eurordis.org for more inofrmation.

May 2020

10th European Conference on Rare Diseases and Orphan Products

15 - 16 May, Stockholm, Sweden, please e mail martina.bergna@eurordis.org for more information.

June 2022

11th European Conference on Rare Diseases and Orphan Products

17 - 18 June, Nice, France, please e mail martina.bergna@eurordis.org for more information.

 

 

Page created: 10/04/2015
Page last updated: 26/04/2019
 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases