EURORDIS Events

 

In light of the COVID-19 pandemic, all EURORDIS events will be held online until May 2021.

We also have a dedicated webinars page where we include upcoming and past webinars that we run to keep you updated about our work, to engage participants in a consultation or to educate on a new topic that is relevant to rare disease patients.

November 2020

Council of National Alliances & Council of European Federations meeting

25 - 27 November 2020

Online. This is a closed meeting.

For more information, please email anja.helm@eurordis.org

February 2021

Black Pearl Awards 2021

24 February 2021

Online. Public registration coming soon!

For more information please see the Black Pearl Awards website or email martina.bergna@eurordis.org.

 

Rare Disease Week

22 - 25 February 2021

Online. This is a closed event for the accepted applicants from the Council of National Alliance members.

For more information please see here, or email kostas.aligiannis@eurordis.org.

 

Rare 2030 plenary conference

23 February 2021

Online. Public registration coming soon!

For more information, please see the Rare2030 website or contact anna.kole@eurordis.org.  

 

Rare Disease Day

28 February 2021

For more information please see the Rare Disease Day website or contact erik.ruiz@eurordis.org.

March 2021

EURORDIS Round Table of Companies

Date to be confirmed.

Online. This is a closed event for members of ERTC.

For more information, please contact celine.schwob@eurordis.org.

May 2021

EURORDIS Membership Meeting

12 – 14 May 2021

Online. This is a closed event for EURORDIS members.

June 2021

EURORDIS General Assembly

17 June 2021

Online. This is a closed event for EURORDIS members.

June 2022

11th European Conference on Rare Diseases and Orphan Products

17 - 18 June

Nice, France

Please contact martina.bergna@eurordis.org for more information.

 

 

Page created: 10/04/2015
Page last updated: 23/10/2020
 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases