Members’ news and announcements

See which members are in the news!

EURORDIS member groups are welcome to send news and announcements to be published on this page.

Does your association have an event to communicate? Send us your news.

September 2018

2018 DEBRA International Congress

7-9 September 2018, Zermatt, Switzerland, more information.

Rare Disease Seminar

13 September, Lija, Malta, more information

Commemorative Mass

19 September, Malta, more information

8th NBIA Family Conference

21-22 September, Düsseldorf, Germany, more information

9. Österreichischer Kongress für seltene Erkrankungen

21-22 September, Graz, Austria, more information

EAMDA 47th annual general assembly

23-25 September, Prague, Czech Republic, more information

SIOPE – MAC (MEPs Against Cancer) Event

25 September, Brussels, Belgium, more information

SIOP Europe Gold Ribbon Awards

25 September, Brussels, Belgium, more information

Genetic Alliance UK Annual Conference

25 September, London, UK more information

Stiff-Person Vereinigung - wissenschaftliches Kolloquium

28 September 2018, Wiesbaden-Naurod, Germany, more information.

International Symposium of the Ehlers-Danlos Syndromes

26- 29 September 2018, Ghent, Belgium, more information.

 


October 2018

Rodamos por Sanfilippo

6 October, Barcelona, Spain, register

Glasgow Rare Disease Showcase

10 October, Glasgow, more information

European Tuberous Sclerosis Complex Association DEA Meeting 2018

19-20 October, Leuven, Belgium, more information


November 2018

Rencontre Nationale Alliance Syndrome de Dravet

24 November, Hopital Necker, Paris, France, more information

RAREfest 2018

30 November - 1 December, Cambridge, UK, more information


January 2019

Journée Nationale Maladie de Gaucher du 31 janvier 2019: " Actualités chez l’enfant et l’adulte"

31 January 2019, more information.


February 2019

7th ACCELERATE Paediatric Oncology Conference

13-14 February, Belgium, more information


May 2019

SIOP Europe 2019 Annual Meeting

20-25 May, Prague, Czech Republic, more information.

 

 




This page is reserved for news, events & announcements concerning Eurordis’ member organisations.

To submit your announcement, e-mail:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org


 

Cette page est réservée aux actualités, événements et annonces des membres d’Eurordis.

Merci d’envoyez votre annonce à:
Anja Helm
Manager of Relations with Patient Organisations
anja.helm@eurordis.org
 



Esta pagina esta reservada para anuncios y acontecimientos de los miembros d’Eurordis.

Por favor, mande su anuncio por e-mail a:  
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

 


 

Diese Seite ist für Nachrichten, Ereignisse und Anzeigen von Eurordis Mitgliedern.

E-mail
Anja Helm
Senior Manager of Relations with Patient Organisations
anja.helm@eurordis.org

 

Esta página está reservada a notícia


s, acontecimentos e anúncios relativos às organizações associadas da EURORDIS.

Envie o seu anúncio por correio electrónico para
Anja Helm
Responsável pelas Relações com as Organizações de Doentes da EURORDIS
anja.helm@eurordis.org

 


Questa pagina è riservata a notizie, eventi e avvisi di attività organizzate dai membri di EURORDIS.

Per presentare il vostro annuncio:

Indirizzo e-mail:
Anja Helm
Direttrice delle relazioni con le Organizzazioni di Pazienti
anja.helm@eurordis.org

 

Page created: 03/12/2009
Page last updated: 14/09/2018
 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases Internacional, é uma iniciativa da EURORDISRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases