International rare disease events

June 2021

Speaker Series on different topics around NMDs

June - August 2021, online, more information

26th European Hematology Association Congress

9 - 17 June 2021, online, more information

8th annual Drug Repurposing for Rare Disease Conference

15-16 June 2021, online, more information

2021 International Tuberous Sclerosis Complex Research Conference: A Vision for the Future

17-19 June 2021, online, more information

2021 National Sibling Leadership Network Conference

18 - 19 June 2021, online, more information

ALAPA, Alianza Argentina de Pacientes: PRIMER CONGRESO DE ENFERMEDADES POCO FRECUENTES LATINOAMERICANO

21 - 23 June 2021, online, more information

International Scientific CDG Symposium 2021 (Virtual)

23 -24 June 2021, online, more information

National Organisation for Rare Disorders' (NORD) Interactive Virtual Forum

Join for the 2021 Living Rare, Living Stronger NORD Patient and Family Forum featuring the Rare Impact Awards. View agenda

26 - 27 June 2021, online, more information

ERN Skin Webinar: Ichthyosis and Palmoplantar Keratoderma

29 June 2021, online, more information

Día Mundial de Artrogriposis 2021

30 June 2021, worldwide, more information


July 2021

Speaker Series on different topics around NMDs

June - August 2021, online, more information

Myhre Syndrome Foundation Virtual Conference

10-11 July 2021, online, more information


August 2021

Speaker Series on different topics around NMDs

June - August 2021, online, more information

World Orphan Drug Congress USA 2021 virtual event

25 - 27 April 2021, Maryland, USA, more information


September 2021

Duchenne Awareness Day

7 September 2021, worldwide, more information


October 2021

EPF Congress 2021

26 - 29 October 2021, online, more information


April 2022

20th International Vasculitis and ANCA Workshop

3-6 April, Dublin, Ireland, more information


July 2022

11th International Prader-Willi Syndrome Organisation Conference!

6 – 10 July 2022, University of Limerick, Ireland, more information

Page created: 03/12/2009
Page last updated: 14/06/2021
 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases