International rare disease events

September 2018

International month of Leukodystrophies

September, more information

78th FIP World Congress of Pharmacy and Pharmaceutical Science

2-6 September 2018, Glasgow, Scotland, more information

2018 DEBRA International Congress

7-9 September 2018, Zermatt, Switzerland, more information.

ECCO 2018

7-9 September, Vienna, Austria, more information

SPIN Sister Society Meeting at EADV Paris

12 September, Paris, France, more infromation

16th International Conference on Batten disease

12-16 September, Lodnon, UK, more information

RareX 2018

13-16 September 2018, Johannesburg, South Africa, more information.

13th International Conference on Rare Diseases and Orphan Drugs (ICORD 2018)

19-20-21 September 2018, Stockholm, Sweden, more information.

Conferencia Internacional Europa Síndrome de Phelan McDermid

21-22- 23 September 2018, Madrid, Spain, more information.

SIOPE – MAC (MEPs Against Cancer) Event

25 September 2018, Brussels, Belgium, more information

2nd XLH Symposium

26 September 2018, Athens, Greece, more information.

International Symposium of the Ehlers-Danlos Syndromes

26- 29 September 2018, Ghent, Belgium, more information.


October 2018

International Gaucher Day 2019

1 October, more information

6th International ALPE congress on Achondroplasia and other dysplasias 

12-14 October, Gijon, Spain, more information

NORD Rare Summit

15-16 October, Washington DC, USA, more information

Congresso Internazionale "Neurofibromatosis Type 1 and 2: from genetics to neurosurgery"

18-19 October, Naples, Italy, more information

European Tuberous Sclerosis Complex Association DEA Meeting 2018

19-20 October, Leuven, Belgium, more information

The First International Symposium on PSP & CBD

25-26 October, London, UK, ticket information  and more information


November 2018

World Orphan Drug Congress 2018

6-8 November, Barcelona, Spain, more information

Keystone Symposia – From Rare to Care: Discovery, Modeling and Translation of Rare Diseases

11-14 November, Vienna, Austria, more information

FRT — Fondation René Touraine Scientific Meeting 2018 - The role of the extracellular matrix in skin physiology and pathology

16 November, Paris, France, more information

RAREfest 2018

30 November - 1 December, Cambridge, UK, more information


December 2018

International Neurology Conference

3-5 December, Valencia, Spain, more information

World Congress on Rare Diseases

5-7 December,  Dubai, UAE, more information.


March 2019

24th Congress of the EAHP

27-29 March, Barcelona, Spain, more information


May 2019

SIOP Europe 2019 Annual Meeting

20-25 May, Prague, more information


January 2020

1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information

 

Page created: 03/12/2009
Page last updated: 10/09/2018
 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases Internacional, é uma iniciativa da EURORDISRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases