International rare disease events

August 2021

Speaker Series on different topics around NMDs

August 2021, online, more information

World Orphan Drug Congress USA 2021

25 - 27 August 2021, Maryland, USA, more information


September 2021

Duchenne Awareness Day

7 September 2021, worldwide, more information

DEBRA International Congress 2021

Organised by DEBRA Russia
Attendance is free of charge
16 - 19 September 2021, online, more information

2021 CHI Virtual RESEARCH Conference

18 September 2021, online, more information

Leaving the darkness: Tackling rare bone disease

22nd September 2021, online, more information

World CML Day 2021 

22 September 2021, worldwide, more information

World Heart Day

29 September 2021, worldwide, more information

SIOPE-MAC WEBINAR FOR GOLD SEPTEMBER:CHILDHOOD CANCER AWARENESS MONTH

30 September 2021, more information


October 2021

Living with SMA: Spotlight on the policy and access environment in Europe

5 October 2021, online, more information

International Usher Info Scientific Symposium  and Patient Symposium

6 - 9 October 2021, online, more information

World MCT8-AHDS Day

8 October 2021, worldwide, more information

NORD Rare Summit (virtual)

18 - 19 October 2021, online, more information

EPF Congress 2021

26 - 29 October 2021, online, more information


April 2022

20th International Vasculitis and ANCA Workshop

3-6 April, Dublin, Ireland, more information


July 2022

11th International Prader-Willi Syndrome Organisation Conference!

6 – 10 July 2022, University of Limerick, Ireland, more information

Page created: 03/12/2009
Page last updated: 08/09/2021
 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases