International rare disease events

July 2019

7th Annual International ECD Medical Symposium

11 July, Milan, Italy, more information

7th Annual International Patient & Family Gathering

12 July, Milan, Italy, more information.

4th World Conference on Congenital Disorders of Glycosylation (CDG)

26 - 27 July, Lisbon, Portugal, more information.

Cornelia de Lange syndrome World conference

31 July - 03 August 2019, Bad Neuenahr-Ahrweiler, Germany, more information


August 2019

Cornelia de Lange syndrome World conference

31 July - 03 August 2019, Bad Neuenahr-Ahrweiler, Germany, more information


September 2019

World Autoinflammatory Awareness Month

September, worldwide, more information

2019 CHI Family Conference

6 - 8 September 2019, Philadelphia, PA, USA more information

7th UIA Associations Round Table Asia-Pacific

19-20 September 2019, Pattaya, Thailand, more information

RAREsummit19

23 September, Cambridgeshire, England, more information


October 2019

International Gaucher Day

1 October, more information


November 2019

International Primary Immunodeficiencies Congress (IPIC) 2019

6-8 November, Madrid, Spain, more information and registrations

10th International Prader-Willi Syndrome Organisation Conference

13-17 November, Havana, Cuba, more information

International conference on Quality of Life for Osteogenesis Imperfecta (OI)

22 - 25 November, Amsterdam, more information


December 2019

Patient Solidarity Day 2019

7 December, more information


January 2020

EB 2020 1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information

 

Page created: 03/12/2009
Page last updated: 05/07/2019
 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases