International rare disease events

April 2020

Human Genome Meeting

05-08 April 2020, Perth, Australia, more information In-person event cancelled because of COVID-19, this event will now be held online

c4c Multi-Stakeholder Meeting on Child Psychiatry

16-17 April 2020, Brussels, Belgium, more information Event tentatively postponed to 10-11 September 2020 due to COVID-19

IAPO 9th Global Patients Congress

16-18 April 2020, Edinburgh, Scotland, more information Postponed due to COVID-19, date tbc

The European IPF Patient Summit

24-26 April 2020, Warsaw, Poland, more information Postponed due to COVID-19, date tbc

2020 Congenital Hyperinsulinism International Family Conference

24-26 April 2020, Fort Worth, Texas, USA, more information In-person event cancelled because of COVID-19, options for online event currently under consideration

May 2020

International Huntington’s Disease Awareness month

May, worldwide, more information

SIOP Europe 2020 Annual Meeting

4-8 May, Valencia, Spain, more information Postponed due to COVID-19, dates tbc

Wishbone Day (community awareness effort ever for osteogenesis imperfecta (OI)

6 May, worldwide, more information

EMSP 2020 Annual Conference

7-9 May 2020, Madrid, Spain, more information Postponed to November 2020 due to COVID-19, dates tbc

WHO 73rd World Health Assembly

17-21 May, Geneva, Switzerland

Rare Diseases International 6th Annual Membership Meeting

19 – 20 May 2020, Geneva, Switzerland

Conference on Women and Bleeding Disorders

29-31 May 2020, Basel, Switzerland  more information 

June 2020

2020 Annual SMA Conference

11-14 June, Orlando, Florida, USA, more information

July 2020

3rd EURO-NMD translational Research Summer School, edition 2020

6-10 July, Lieden, Netherlands, more information

August 2020

World Orphan Drug Congress

24-26 August 2020, Oxon Hill, Maryland, USA, more information

46th Annual Meeting of the European Society for Blood and Marrow Transplantation

30 August – 2 September 2020, Madrid, Spain, more information

September 2020

The ‘’3rd Pan-Asian Regional Conference on Thalassaemia & other Haemoglobinopathies’’ 

Dates to be confirmed, New Delhi, India more information

October 2020

7th international Symposium on NBIA & related disorders

1-3 October, Lausanne, Switzerland, more information

4th European Working Group on Gaucher Disease Congress

11 - 14 October 2020 in Leiden, The Netherlands, more information

The 2020 International Brain Tumour Awareness Week

24-31 October, worldwide, more information

34th E.S.PKU Conference 2020

29 October - 1 November, Madrid, Spain, more information

November 2020


19 November 2020, Rockville, Maryland, USA, more information

The International Netherton Conference

26-27 November, Rotterdam, Netherlands, more information

The ‘’15th International Conference on Thalassaemia & other Haemoglobinopathies’’  & the ‘’17th TIF Conference for Patients & Parents’’  

Dates to be confirmed, Thessaloniki, Greece more information

March 2021

The ‘’3rd Pan –Middle East Conference on  Haemoglobinopathies’’

Dates to be confirmed, United Arab Emirates more information

Huntington's Disease Youth Organisation - 1st Young Adult Congress

12 - 14 March 2021, Glasgow, Scotland, more information

Page created: 03/12/2009
Page last updated: 02/04/2020
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases