International rare disease events

September 2020

World CML Day

22 September, worldwide, more information

The ‘’3rd Pan-Asian Regional Conference on Thalassaemia & other Haemoglobinopathies’’ 

Dates to be confirmed, New Delhi, India more information


October 2020

7th international Symposium on NBIA & related disorders

1-3 October, Lausanne, Switzerland, more information

EDS ECHO SUMMIT: A Virtual Scientific Conference on EDS, HSD, and Comorbidities

2-3 October, online, more information

World MCT8-AHDS Day 2020

8 October 2020, worldwide, more information

NORD Rare Diseases and Orphan Products Breakthrough Summit

8-9 October 2020, online, more information

4th European Working Group on Gaucher Disease Congress

11 - 14 October 2020 in Leiden, The Netherlands, more information

Run like a Hero- Global PHELAN-MCDERMID Running Week

17-25 October, worldwide, more information

The 2020 International Brain Tumour Awareness Week

24-31 October, worldwide, more information

34th E.S.PKU Conference 2020

29 October - 1 November, Madrid, Spain, more information


November 2020

Scientific conference "Sanfilippo Syndrome and Related Diseases"

12-13 November 2020, online, more information

ERN CRANIO annual meeting 2020

13-14 September 2020, Barcelona, Spain, more information

THE INTERNATIONAL SYNGAP1 CONFERENCE AND FDA PFDD SYNGAP1: Patient Voices

19 November 2020, Rockville, Maryland, USA, more information

EMSP 2020 Annual Conference

20-21 November 2020, Madrid, Spain, more information

The International Netherton Conference

26-27 November, Rotterdam, Netherlands, more information

RAREfest20 Virtual: Interactive science, technology & arts festival

28 November, online, more information

The ‘’15th International Conference on Thalassaemia & other Haemoglobinopathies’’  & the ‘’17th TIF Conference for Patients & Parents’’  

Dates to be confirmed, Thessaloniki, Greece more information


December 2020

European Neurofibromatosis Meeting 2020

10-12 December, Rotterdam, The Netherlands, more information

Duchenne Patient Academy (DPA)

December 2020, Athens, more information


February 2021

Rare Disease Day

28 February, worldwide, more information


March 2021

The ‘’3rd Pan –Middle East Conference on  Haemoglobinopathies’’

Dates to be confirmed, United Arab Emirates more information

Huntington's Disease Youth Organisation - 1st Young Adult Congress

12 - 14 March 2021, Glasgow, Scotland, more information

25th Anniversary Congress of the EAHP – “Hospital Pharmacy 5.0 - the future of patient care“

24 - 26 March 2021, Vienna, Austria, more information

Page created: 03/12/2009
Page last updated: 29/09/2020
 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases