International rare disease events

January 2020

Digitalisation and infectious diseases: improving patient outcome in the age of big data

20-21 January, Basel Switzerland, more information

EB 2020 1st  Global Congress on Epidermolysis Bullosa

19-23 January, London, UK, more information

February 2020

8th ACCELERATE Paediatric Oncology Conference

6-7 February 2020, Brussels, Belgium, more information

Rare Disease Film Festival

10 February, UK, more information

International Childhood Cancer Awareness Day (ICCD 2020)

18 February, worldwide, more information

XVIII International Conference on Duchenne and Becker Muscular Dystrophy

28 February - 1 March, Rome, Italy, more information

March 2020

6th RE(ACT) Congress - 4th IRDiRC Conference 2020

11-14 March, Berlin, Germany, more information

4th ISNS Middle East-North Africa Regional Meeting 

8-11 March , Limassol, Cyprus

April 2020

Human Genome Meeting

05-08 April 2020, Perth Australia, more information 

The European IPF Patient Summit

24-26 April 2020, Warsaw, Poland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information

May 2020

International Huntington’s Disease Awareness month

May, worldwide, more information

SIOP Europe 2020 Annual Meeting

4-8 May, Valencia, Spain, more information

EMSP 2020 Annual Conference

7-9 May 2020, Madrid, Spain, more information

Huntington's Disease Youth Organisation - 1st Young Adult Congress

9-11 May 2020, Glasgow, Scotland, more information

World Orphan Drug Congress

29 April - 1 May 2020, Oxon Hill, Maryland, USA, more information

WHO 73rd World Health Assembly

17-21 May, Geneva, Switzerland

Rare Diseases International 6th Annual Membership Meeting

19 – 20 May 2020, Geneva, Switzerland

July 2020

3rd EURO-NMD translational Research Summer School, edition 2020

6-10 July, Lieden, Netherlands, more information

September 2020

The ‘’3rd Pan-Asian Regional Conference on Thalassaemia & other Haemoglobinopathies’’ 

Dates to be confirmed, New Delhi, India more information

October 2020

7th international Symposium on NBIA & related disorders

1-3 October, Lausanne, Switzerland, more information

November 2020

The ‘’15th International Conference on Thalassaemia & other Haemoglobinopathies’’  & the ‘’17th TIF Conference for Patients & Parents’’  

Dates to be confirmed, Thessaloniki, Greece more information

March 2021

The ‘’3rd Pan –Middle East Conference on  Haemoglobinopathies’’

Dates to be confirmed, United Arab Emirates more information

Page created: 03/12/2009
Page last updated: 22/01/2020
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases