International rare disease events

 


April 2018

The European Ehlers-Danlos Syndromes Conference

6-7 April, Maastricht, The Netherlands more information

AKU Society 2nd International Patient Workshop

23-24 April 2018, Liverpool, United Kingdom, more information

European Alpha-1 Awareness Day

24 April 2018, Brussels, Belgium, more information

World Orphan Drug Congress USA 2018

25-27 April 2018, Maryland, USA, more information

International Degos Disease Symposium

27 April 2018, Maryland, USA, more information


May 2018

International Workshop on Biobanking for Rare Diseases

02-03 May 2018, Izmir, Turkey, regsiter by 12 March

International Symposium on Bridging Biobanks in MENA Countries to Promote Research and Healthcare

04 May 2018, Izmir, Turkey, register by 27 April

2018 International Pemphigus and Pemphigoid Foundation (IPPF) Pre-IID Satellite Meeting: Pemphigus and Pemphigoid: A New Era of Translational and Clinical Science

15 - 16 May 2018, Florida, USA, more information.


July 2018

Radiz Rare Diseases Summer School

11-13 July 2018, Warth, Switzerland, more information

Family Conference for myotubular and centronuclear myopathy

14-15 July 2018, London, UK, more information

 


September 2018

78th FIP World Congress of Pharmacy and Pharmaceutical Science

2-6 September 2018, Glasgow, Scotland, more information


October 2018

The First International Symposium on PSP & CBD

25-26 October, London, UK, ticket information  and more information


November 2018

Keystone Symposia – From Rare to Care: Discovery, Modeling and Translation of Rare Diseases

November 11-14, Vienna, Austria, more information


May 2019

SIOP Europe 2019 Annual Meeting

20-25 May, Prague, more information

 

Page created: 03/12/2009
Page last updated: 05/04/2018
 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases Internacional, é uma iniciativa da EURORDISRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. A RareConnect é uma iniciativa da EURORDIS RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases