The 8th European Conference on Rare Diseases & Orphan Products (ECRD 2016 Edinburgh)

The 8th European Conference on Rare Diseases & Orphan Products (ECRD) takes place from 26 to 28 May 2016 at the Edinburgh International Conference Centre, Edinburgh, UK.

For more information about ECRD 2016 Edinburgh, visit the official conference website: www.rare-diseases.eu or see the #ECRD2016 on twitter

Motto of the European Conference on Rare Diseases & Orphan Products (ECRD)

  • The ECRD is the unique platform/forum across all rare diseases, across all European countries, bringing together all stakeholders – patients’ representatives, academics, health care professionals, industry, payers, regulators and policy makers.
  • It is a biennial event, providing the state-of-the-art of the rare disease environment, monitoring and benchmarking initiatives.
  • It covers research, development of new treatments, health care, social care, information, public health and support at European, International, national and regional levels.
  • It is synergistic with national and regional conferences, enhancing efforts of all stakeholders. There is no competition with them, but efforts are complementary, fully respecting initiatives of all.

 

Official Conference Partners of the ECRD 2016 Edinburgh 

EURORDIS: Conference organiser
DIA: Conference co-organiser

 

Official Partners

EFPIA: The European Federation of Pharmaceutical Industries and Associations

EMA: European Medicines Agency

ESHG: European Society of Human Genetics

EUROPABIO: European Association for Bio Industries

EUCOPE: European Confederation of Pharmaceutical Entrepreneurs

FDA (OOPD): Food & Drug Administration, Office of Orphan Products Development

Genetic Alliance UK

HOPE: European Hospital and Healthcare Federation

NIHR RD Translational Research Collaboration

Orphanet

The Scottish Government

 

With the support of:

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Page created: 24/09/2015
Page last updated: 19/03/2018
 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases