#Pledge4RD ahead of the 2019 European elections

From 23 to 26 May 2019, citizens across the EU will vote for the Members of the European Parliament (MEPs) they want to represent them for the next five years.

To ensure that the 25 - 30 million people living with a rare disease in Europe and their families are not left behind and achieve their highest potential of health and well-being, we are calling on MEPs to #Pledge4RD.

 

Ask your MEP to #Pledge4RD

>> Why should your MEP care?

Because rare is common. Many people are affected by a rare disease or know someone who is.

Rare diseases affect 25-30 million people in the EU, nearly 5% of the EU population, or the population of Belgium and the Netherlands combined. This estimate only increases when considering the carers, families and friends who need to support their loved ones.

There are over 6,000 rare diseases. The reality is that most people know somebody that is affected by a rare disease, whether they realise it or not.

Now is the time to call on your returning MEP or a candidate MEP to pledge their support for rare diseases.

>> How can they #Pledge4RD? <<

  1. Download and print the #Pledge4RD sign.
  2. Post their photo on social media using #Pledge4RD #EUelections2019 and tagging @eurordis

 

The #Pledge4RD to leave no one behind

To ensure that the 25 - 30 million people living with a rare disease in Europe and their families are not left behind and achieve their highest potential of health and well-being, MEPs can #Pledge4RD to support a new political framework that:

Read the full pledge leaflet

Click here to download the PDF >>>

 

MEPs & candidates who have pledged

#Pledge4RD #EUelections2019

We thank MEPs and candidates who have already pledged for rare diseases:

Czech Republic

Kateřina Konečná MEP, GUE/NL

Finland

Sirpa PIETIKAÏNEN MEP, EPP

France

Françoise GROSSETÊTE MEP, EPP

Italy

Elisabetta GARDINI MEP, EPP

Poland

Marek PLURA MEP, EPP

Slovenia

Tanja Fajon, S&D

 

 

 

 
 
A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases