Albert van der Zeijden

After a study educational theory at the University of Utrecht he became a teacher and principal of a teachers’ trainings college till 1982. Till 1988 he was the chairman of the board of another teachers’ training college.


In 1980 he became interested in health care and patient advocacy after he was diagnosed as having Crohns’ disease and enkylosing spondylitis (Bechterews’ disease). Since 2005 his heart is supported by an implantable cardio defibrillator (ICD) after a heart arrest. Since 1982 Mr. van der Zeijden has been one of the initiators and (vice)-presidents of many patients’ organisations as well at the national, European and international level. Including the Dutch Crohns’ and Ulcerative Colitis Association (CCUVN) and the European Federation of Crohn’ and Ulcerative Colitis Associations (EFCCA), the Council of the Chronical Ill and the handicapped of the Netherlands (CGCouncil), the International Alliance of Patients’ Organizations (IAPO) and the Dutch Steering Group on Orphan Drugs.

At present he is the representative of the International Alliance of Patients’ Organizations at the European Medicines Agency (EMA) as well as a member of numerous boards, committees and working parties, including:

The Pharmaceutical Risk Assessment Committee (PRAC) of EMA
The patients’ and Consumers’ Working Party (PCWP) of EMA
The European Health Forum Gastein (EHFG)
Vice-president of Health First Europe (HFE)
The Dutch agence for the registration of adverse drug reactions Lareb

A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases