Anne-Laure Aslanian

  • Patient Engagement Manager Healthcare – ERN & Healthcare / European Patient Advocacy Groups

Anne-Laure Aslanian joined EURORDIS in March 2019 as Patient Engagement Manager. She is managing and supporting 8 out of the 24 European Patient Advocacy Groups (ePAGs) that were set up by EURORDIS to ensure a meaningful patient advocates’ engagement across all European Reference Networks (ERNs) activities.  Anne-Laure also leads the communication and knowledge management activities to support the 24 ePAGs’ work and facilitate exchange of good practices and access to information.

Anne-Laure has several years of experience in research and innovation project management and development of international research project proposals. Prior to joining EURORDIS, she worked for 4 years in a hospital research institute and in a biomedicine center in Barcelona to foster the participation of researchers and clinicians in research grants opportunities and to enhance their collaboration in European healthcare initiatives.

She holds a Master’s degree in European Studies and International Business Law from Aix-Marseille University (France).

She is a native French speaker, she also speaks English, Spanish, Catalan and basic Portuguese.

Telephone: +34 93 220 48 60

A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases