Christine Kubiak

Christine KubiakAfter her initial training in pharmacy and a PhD in pharmaceutical sciences in drug targeting, Christine worked 14 years in the pharmaceutical industry in clinical development and in the management of multinational projects in rheumatology, neurology, infectious diseases, oncology, and with vaccines and contrast agents for medical imaging. Then, she spent two years in an academic centre in EURORDIS SUMMER SCHOOL UAB Barcelona June 1-5, 2015 charge of quality system and projects management and obtained a master degree in quality management in 2006. 

Christine Kubiak joined ECRIN in October 2006 as European correspondent and then as executive manager. She is also involved in different initiatives related to clinical trials legislation and management (FP7 ICREL, Roadmap Initiative) and was consultant for the OECD working group on ”international cooperation in non-commercial clinical trials”.

A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases