Davor Duboka

  • Web Technology Manager

Davor Duboka joined EURORDIS in 2018 as Web Technology Manager.

Davor is part of the wider Communications Team where he is responsible for the technical, project and content management aspects of all EURORDIS websites. He is also responsible for providing technical support and training on other web tools and technologies to his colleagues.

Before joining EURORDIS, he was already involved in patient advocacy and held the position of Executive Director of NORBS (the Serbian National Alliance for Rare Diseases). He also worked as Sound Designer and IT Maintenance Manager at the Atelje 212 Theatre in Belgrade, Serbia.

He is a father of two boys, the elder of which is living with Gaucher disease.

He holds a degree in Automotive Engineering from the Mechanical Engineering faculty in Belgrade, Serbia, as well as a degree in Sound Design from the Faculty of Dramatic Arts in Belgrade.

A Serbian national, Davor speaks Serbian, English, French and Russian.

Telephone: +33 1 56 53 52 10
Email: davor.duboka@eurordis.org

A voz das pessoas com doenças raras na EuropaEURORDIS A voz internacional das pessoas com doenças raras, Rare Diseases InternacionalRare Disease International Reúne doentes, famílias e especialistas para partilhar experiências num fórum multilinguístico. RareConnect O programa Rare Barometer é uma iniciativa da EURORDIS para a realização de inquéritos para transformar a experiência das pessoas com doenças raras em números e factos que podem ser partilhados com os responsáveis pela tomada de decisões.Rare Barometer An international awareness raising campaign taking place on the last day of February each year, Rare Disease Day is a EURORDIS initiativeRare Disease Day Adira ao maior encontro europeu das partes interessadas no âmbito das doenças raras na Conferência Bienal Europeia sobre Doenças Raras e Produtos Órfãos. A ECRD é uma iniciativa da EURORDISEuropean Conference on Rare Diseases